Find a job 
Featured Companies 
Featured Universities 
For Companies At a Glance
- Tasks: Help shape projects and priorities for the epilepsy community through feedback and collaboration.
- Company: Join Epilepsy Action, a dedicated organisation focused on improving lives affected by epilepsy.
- Benefits: Flexible volunteering hours, valuable experience, and the chance to make a real difference.
- Why this job: Use your lived experience to influence change and support others in the epilepsy community.
- Qualifications: Personal experience with epilepsy or as a carer; passion for advocacy and community support.
- Other info: Engage with health professionals and researchers while building your social CV.
Volunteer Now has partnered with Be Collective to bring a dedicated online platform for volunteering to Northern Ireland. The platform supports volunteers through the volunteering process and helps connect more people with a wider range of opportunities. There’s lots of great features to Be Collective like messaging, making a profile, and being able to compile all your experiences, training and roles as well as the skills gained within a social CV. You can search and apply for volunteer roles below. If you can’t find anything you like at the moment – register now, then check back soon – new opportunities are added all the time!
We put people affected by epilepsy at the heart of everything we do, and we value their input in all of our activities. This is why our Lived Experience volunteers are so important - these are our true epilepsy experts. They know what it is like to deal with epilepsy every day, what problems it can create and what opportunities it can present. We want to hear the voices of everyone affected by epilepsy, so we can make sure that we focus on work that will have the biggest impact for them.
If you have epilepsy yourself, or are a carer or close family member to someone with epilepsy, we would like to have your input into our work. We need your help to set priorities, to give feedback on our work and the work we do alongside researchers and the NHS. We would also love your input into our Excellence Collective. This brings together people affected by epilepsy, health and social care professionals, researchers and policymakers to highlight the problems faced by the epilepsy community, and to work together to overcome those problems.
In this role you may be answering surveys, joining focus groups, giving feedback on documents, or being a member of a steering group or advisory panel. Our Lived Experience volunteers carry out their roles around their daily lives. This role is very flexible and can be done whenever you are free. You can do as much or as little as you like, and can choose to help on the projects that interest you the most.
Tasks and responsibilities:
- Helping to set priorities for Epilepsy Action’s Excellence Collective
- Giving feedback and helping to shape and steer our projects
- Giving feedback on research and healthcare quality improvement projects that we support
- Reading documents and giving feedback
- Joining focus groups to give feedback on projects
Lived Experience Volunteer - Epilepsy Action employer: Volunteer Now
Contact Detail:
Volunteer Now Recruiting Team
StudySmarter Expert Advice 🤫
We think this is how you could land Lived Experience Volunteer - Epilepsy Action
✨Tip Number 1
Get to know the organisation! Before you apply, spend some time researching Epilepsy Action and their mission. Understanding their values and goals will help you tailor your approach and show them you're genuinely interested in making a difference.
✨Tip Number 2
Network like a pro! Connect with current or past volunteers on platforms like LinkedIn or Be Collective. They can provide insider tips and might even give you a heads-up about upcoming opportunities that aren't widely advertised.
✨Tip Number 3
Be proactive! If you see a role that interests you, don’t hesitate to reach out directly to the team at Epilepsy Action. A quick message expressing your enthusiasm can set you apart from other candidates.
✨Tip Number 4
Keep your profile updated! Make sure your Be Collective profile showcases your experiences and skills relevant to the role. A well-crafted social CV can make it easier for organisations to see how you can contribute.
We think you need these skills to ace Lived Experience Volunteer - Epilepsy Action
Some tips for your application 🫡
Be Yourself: When filling out your application, let your personality shine through! We want to get to know the real you, so don’t be afraid to share your experiences and thoughts about living with epilepsy or supporting someone who does.
Tailor Your Application: Make sure to customise your application for the Lived Experience Volunteer role. Highlight any relevant experiences that showcase your understanding of epilepsy and how you can contribute to our mission at Epilepsy Action.
Show Your Passion: We love seeing enthusiasm! In your application, express why you’re interested in volunteering with us and how you believe your input can make a difference. Your passion can really set you apart from other candidates.
Apply Through Our Website: To make things easier for both you and us, please apply directly through our website. It’s straightforward and ensures your application gets to the right place quickly. Plus, you can keep an eye on new opportunities as they come up!
How to prepare for a job interview at Volunteer Now
✨Know Your Story
As a Lived Experience Volunteer, your personal journey with epilepsy is invaluable. Be ready to share your experiences and how they shape your perspective. This will not only highlight your expertise but also show your passion for the role.
✨Research Epilepsy Action
Familiarise yourself with Epilepsy Action's mission and recent projects. Understanding their work will help you align your answers with their goals and demonstrate your genuine interest in contributing to their initiatives.
✨Prepare Thoughtful Questions
Think of insightful questions to ask during the interview. This shows that you’re engaged and eager to learn more about how you can contribute. Consider asking about their current projects or how they measure the impact of volunteer contributions.
✨Show Flexibility and Commitment
Emphasise your ability to balance this volunteering role with your daily life. Highlight your willingness to adapt and commit to projects that resonate with you, showcasing your dedication to making a difference in the epilepsy community.
