At a Glance
- Tasks: Engage with global registries to enhance data quality and support innovative projects.
- Company: Join TREAT-NMD, a leader in advancing neuromuscular disease treatments.
- Benefits: Competitive salary, opportunities for travel, and professional development.
- Other info: Dynamic role with opportunities for growth and international collaboration.
- Why this job: Make a real difference in patients' lives while working with a passionate team.
- Qualifications: Experience in project management and strong communication skills required.
The predicted salary is between 31000 - 31000 € per year.
TREAT-NMD is a global network of experts dedicated to advancing the neuromuscular field. The organisation is committed to accelerating the development of effective treatments and ensuring the highest standards of diagnosis and care for individuals worldwide. Collaborating with a diverse range of stakeholders, TREAT-NMD fosters innovation and provides critical resources to improve patient outcomes. Through its network, TREAT-NMD makes a significant impact on the lives of people affected by neuromuscular diseases.
The aim of the Global Registry Network Engagement Associate is to bring together network committee member registries into a sustainable, structured network and set of subgroups, that are capable of delivering an increasing number of projects, enquiries, and other activities. The postholder will have an in-depth understanding of how registries interact with TREAT-NMD infrastructure (e.g. data quality tool, GRP, and CDW) and the capability of each registry. They will work with the Head of Real-World Evidence to develop and expand a core group of registries able to deliver complex projects. The post holder will lead on all communications around network membership, project and enquiry participation, dataset rollout and data quality and will work with the registries team and network committees to address challenges, especially to improve the quality of data collected by registries and to support registries in adopting the sNMD dataset.
Main Duties and Responsibilities
- Develop and maintain a structured engagement plan for the registry network
- Deliver a range of engagement activities including webinars, online portals and virtual meetings
- Manage the membership process of the TREAT-NMD Global Registry Network including new memberships and renewals, and maintain a record of registries using Monday.com
- Lead registry-facing communications and act as first point of contact for registries during data projects and other work
- Work with team to identify priority registries and develop plans for support and training for these registries
- Ensure registries have up-to-date documents including CDAs, DSAs, and DTAs (as required) and maintain a record of completed documents using Monday.com
- Administer and attend fortnightly network steering committee calls to provide updates to the Chairs on relevant areas (e.g. network membership)
- Organise and attend meetings of network subgroups and undertake tasks on their behalf to increase engagement and functionality of network
- Contribute to efforts to update datasets, and log issues for discussion by subgroups
- Develop plans and the agenda for the annual curators meeting and support registry participation
Registry Project Involvement
- Coordination with individual registries to understand participation and facilitate data sharing
- Undertake an initial, visual quality check of submitted data if required
- Work with individual registries to communicate and resolve data queries
Registry Support
- Coordinate network and dataset bursary schemes and support staff writing applications for funding for industry-funded bursaries
- Develop an understanding of challenges faced by registries and develop support mechanisms to help registries overcome challenges
- Produce information and education materials to help registries play a more active role in the network and its work
Registry infrastructure
- Gain an in-depth understanding of TREAT-NMD infrastructure and provide demos to potential registry users
- Onboard registries to and provide training materials and user support to those registries
- Monitor issue resolution by Data Governance and Technology team and maintain oversight of IT-support conversations with registries
- Advise on suggested adaptations and modifications to the system, that will result in enhanced user satisfaction
Other Requirements
- Undertake national/international travel, sometimes at short notice, as required
- Undertake work outside of normal working hours on an occasional basis
Salary: £31,000 circa per annum depending on qualifications and experience
Please send your CV and a letter of application to info@treat-nmd.com by Monday 18th May 2026
Global Registry Network Engagement Associate in Newcastle upon Tyne employer: TREAT-NMD
TREAT-NMD is an exceptional employer, offering a collaborative and innovative work culture dedicated to improving the lives of individuals affected by neuromuscular diseases. Employees benefit from meaningful engagement with a global network of experts, opportunities for professional growth through diverse projects, and the chance to make a significant impact in the healthcare field. Located in a dynamic environment, TREAT-NMD fosters a supportive atmosphere that encourages creativity and teamwork, making it an ideal place for those passionate about advancing medical research and patient care.
StudySmarter Expert Advice🤫
We think this is how you could land Global Registry Network Engagement Associate in Newcastle upon Tyne
✨Tip Number 1
Networking is key! Get out there and connect with professionals in the neuromuscular field. Attend relevant events, webinars, or even local meet-ups to make those valuable connections that could lead to job opportunities.
✨Tip Number 2
Don’t underestimate the power of social media. Follow TREAT-NMD and other organisations on platforms like LinkedIn. Engage with their posts and share your insights to get noticed by potential employers.
✨Tip Number 3
Prepare for interviews by researching the latest trends in neuromuscular diseases and registries. Show that you’re not just interested in the role but also passionate about making a difference in the field.
✨Tip Number 4
Apply through our website! It’s the best way to ensure your application gets seen. Plus, it shows you’re genuinely interested in being part of the TREAT-NMD community.
We think you need these skills to ace Global Registry Network Engagement Associate in Newcastle upon Tyne
Some tips for your application 🫡
Tailor Your CV:Make sure your CV reflects the skills and experiences that are relevant to the Global Registry Network Engagement Associate role. Highlight any experience you have with registry management, data quality, or stakeholder engagement to show us you're a great fit!
Craft a Compelling Cover Letter:Your cover letter is your chance to shine! Use it to explain why you're passionate about neuromuscular diseases and how your background aligns with TREAT-NMD's mission. We want to see your enthusiasm and commitment to improving patient outcomes.
Showcase Your Communication Skills:Since this role involves leading communications with registries, make sure to demonstrate your strong communication skills in your application. Whether it's through clear writing or examples of past interactions, we want to see how you can engage effectively with diverse stakeholders.
Apply Through Our Website:We encourage you to apply directly through our website for a smoother process. It helps us keep track of applications and ensures you don’t miss out on any important updates. Plus, it shows us you're keen to be part of our community!
How to prepare for a job interview at TREAT-NMD
✨Know Your Registries
Before the interview, dive deep into understanding how registries operate within TREAT-NMD. Familiarise yourself with their data quality tools and the specific challenges they face. This knowledge will help you demonstrate your capability to engage effectively with network members.
✨Showcase Your Communication Skills
As a Global Registry Network Engagement Associate, communication is key. Prepare examples of how you've successfully managed stakeholder communications in the past. Be ready to discuss how you would lead registry-facing communications and handle queries during data projects.
✨Engagement Activities Experience
Think about any experience you have with organising webinars or virtual meetings. Be prepared to share specific examples of how you’ve engaged diverse groups in the past, as this role requires delivering a range of engagement activities to foster collaboration.
✨Demonstrate Problem-Solving Skills
The role involves addressing challenges faced by registries. Prepare to discuss situations where you've identified problems and implemented solutions. Highlight your ability to develop support mechanisms that can help registries overcome their challenges.
