At a Glance
- Tasks: Engage with global registries to enhance data quality and support innovative projects.
- Company: Join TREAT-NMD, a leader in advancing neuromuscular disease treatments.
- Benefits: Competitive salary, opportunities for travel, and professional development.
- Other info: Dynamic role with opportunities for growth and international collaboration.
- Why this job: Make a real difference in patients' lives while working with a passionate team.
- Qualifications: Strong communication skills and understanding of registry operations.
The predicted salary is between 31000 - 31000 € per year.
TREAT-NMD is a global network of experts dedicated to advancing the neuromuscular field. The organisation is committed to accelerating the development of effective treatments and ensuring the highest standards of diagnosis and care for individuals worldwide. Collaborating with a diverse range of stakeholders, TREAT-NMD fosters innovation and provides critical resources to improve patient outcomes. Through its network, TREAT-NMD makes a significant impact on the lives of people affected by neuromuscular diseases.
The aim of the Global Registry Network Engagement Associate is to bring together network committee member registries into a sustainable, structured network and set of subgroups, that are capable of delivering an increasing number of projects, enquiries, and other activities. The postholder will have an in-depth understanding of how registries interact with TREAT-NMD infrastructure (e.g. data quality tool, GRP, and CDW) and the capability of each registry. They will work with the Head of Real-World Evidence to develop and expand a core group of registries able to deliver complex projects.
The post holder will lead on all communications around network membership, project and enquiry participation, dataset rollout and data quality and will work with the registries team and network committees to address challenges, especially to improve the quality of data collected by registries and to support registries in adopting the sNMD dataset.
Main Duties and Responsibilities
- Develop and maintain a structured engagement plan for the registry network.
- Deliver a range of engagement activities including webinars, online portals and virtual meetings.
- Manage the membership process of the TREAT-NMD Global Registry Network including new memberships and renewals, and maintain a record of registries using Monday.com.
- Lead registry-facing communications and act as first point of contact for registries during data projects and other work.
- Work with team to identify priority registries and develop plans for support and training for these registries.
- Ensure registries have up-to-date documents including CDAs, DSAs, and DTAs (as required) and maintain a record of completed documents using Monday.com.
- Administer and attend fortnightly network steering committee calls to provide updates to the Chairs on relevant areas (e.g. network membership).
- Organise and attend meetings of network subgroups and undertake tasks on their behalf to increase engagement and functionality of network.
- Contribute to efforts to update datasets, and log issues for discussion by subgroups.
- Develop plans and the agenda for the annual curators meeting and support registry participation.
Registry Project Involvement
- Coordination with individual registries to understand participation and facilitate data sharing.
- Undertake an initial, visual quality check of submitted data if required.
- Work with individual registries to communicate and resolve data queries.
Registry Support
- Coordinate network and dataset bursary schemes and support staff writing applications for funding for industry-funded bursaries.
- Develop an understanding of challenges faced by registries and develop support mechanisms to help registries overcome challenges.
- Produce information and education materials to help registries play a more active role in the network and its work.
Registry infrastructure
- Gain an in-depth understanding of TREAT-NMD infrastructure and provide demos to potential registry users.
- Onboard registries to and provide training materials and user support to those registries.
- Monitor issue resolution by Data Governance and Technology team and maintain oversight of IT-support conversations with registries.
- Advise on suggested adaptations and modifications to the system, that will result in enhanced user satisfaction.
Other Requirements
- Undertake national/international travel, sometimes at short notice, as required.
- Undertake work outside of normal working hours on an occasional basis.
Salary: £31,000 circa per annum depending on qualifications and experience.
Please send your CV and a letter of application by Monday 18th May 2026.
Global Registry Network Engagement Associate employer: TREAT-NMD
TREAT-NMD is an exceptional employer, dedicated to making a meaningful impact in the neuromuscular field. With a strong commitment to employee growth and collaboration, TREAT-NMD offers a supportive work culture that encourages innovation and professional development. Located in a vibrant environment, employees benefit from engaging with a diverse network of experts while contributing to critical projects that improve patient outcomes worldwide.
StudySmarter Expert Advice🤫
We think this is how you could land Global Registry Network Engagement Associate
✨Tip Number 1
Network, network, network! Reach out to professionals in the neuromuscular field on LinkedIn or at industry events. We can’t stress enough how valuable personal connections can be in landing that dream job.
✨Tip Number 2
Prepare for interviews by researching TREAT-NMD and its projects. Show us you’re genuinely interested in their mission and how you can contribute to improving patient outcomes. Tailor your responses to reflect their values!
✨Tip Number 3
Don’t just wait for job openings; create opportunities! If you see a gap in their current projects or processes, pitch your ideas. We love proactive candidates who can think outside the box and bring fresh perspectives.
✨Tip Number 4
Apply through our website for the best chance of getting noticed. Make sure your application highlights your relevant experience with registries and data quality tools, as these are key to the role. Let’s get you in the door!
We think you need these skills to ace Global Registry Network Engagement Associate
Some tips for your application 🫡
Tailor Your CV:Make sure your CV reflects the skills and experiences that are relevant to the Global Registry Network Engagement Associate role. Highlight any experience you have with registry management or data quality tools, as this will show us you're a great fit!
Craft a Compelling Cover Letter:Your cover letter is your chance to shine! Use it to explain why you're passionate about neuromuscular diseases and how your background aligns with TREAT-NMD's mission. We want to see your enthusiasm and commitment to improving patient outcomes.
Showcase Your Communication Skills:Since the role involves leading communications with registries, make sure to demonstrate your strong communication skills in your application. Whether it's through clear writing or examples of past interactions, we want to see how you can engage effectively with diverse stakeholders.
Apply Through Our Website:Don't forget to submit your application through our website! This helps us keep everything organised and ensures your application gets the attention it deserves. Plus, it’s super easy to do!
How to prepare for a job interview at TREAT-NMD
✨Know Your Registries
Before the interview, dive deep into understanding how registries operate within TREAT-NMD's framework. Familiarise yourself with the data quality tools and the specific capabilities of different registries. This knowledge will help you demonstrate your readiness to engage effectively with network members.
✨Showcase Your Communication Skills
As a Global Registry Network Engagement Associate, communication is key. Prepare examples of how you've successfully led communications or managed stakeholder relationships in the past. Be ready to discuss how you would approach registry-facing communications and support during data projects.
✨Engagement Activities Are Essential
Think about innovative engagement activities you could propose, such as webinars or virtual meetings. Be prepared to discuss how you would develop and maintain a structured engagement plan for the registry network, showcasing your creativity and strategic thinking.
✨Demonstrate Problem-Solving Skills
The role involves addressing challenges faced by registries. Prepare to discuss specific instances where you've identified problems and implemented solutions. Highlight your ability to develop support mechanisms that can help registries overcome their challenges effectively.
