At a Glance
- Tasks: Join our board as a trustee to guide strategy and support families affected by NKH.
- Company: The Mikaere Foundation is a charity dedicated to helping children with rare diseases.
- Benefits: Enjoy remote work flexibility and the chance to make a real impact in the community.
- Other info: This is a voluntary role with expenses covered; creativity and fresh ideas are encouraged.
- Why this job: Be part of a passionate team making a difference for children and families facing NKH.
- Qualifications: Experience in strategy or finance is preferred, but all backgrounds are welcome.
Volunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation
Join to apply for the Volunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation role at The Mikaere Foundation
Volunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation
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Join to apply for the Volunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation role at The Mikaere Foundation
The Mikaere Foundation is looking for a new hands-on trustee to expand the skills within its board. Help guide strategy, governance and growth.
What difference will you make?
When one in three children born with NKH aren\'t likely to see their first birthday, you will be helping to bring about change. It will be because of the work you do, that one day, we\'ll be able give children with NKH a future.
What are we looking for?
We’re looking for someone with strategy and/or finance/investment experience - whether in a professional, voluntary, or community setting - who is confident supporting and guiding others. You don’t need to have been a trustee before or worked in the charity sector. A strategic thinker who can help guide decision-making A collaborative team player who encourages open discussion Organised and proactive, with a willingness to get involved Passionate about supporting children, families, and community Skills in finance/investment, strategy, fundraising, or recruiting volunteers would be especially welcome, but we value a wide range of experiences and backgrounds.
What will you be doing?
At the Mikaere Foundation, we support children and families with Nonketotic Hyperglycinemia (NKH), a rare and terminal metabolic disorder. We\'re a small charity looking to grow.At the Mikaere Foundation, we Support to children and families who live with NKH across the UK, by providing patient information and resources Raise awareness of research to aid diagnosis and treatment of patients with NKH Work with the NHS and other bodies to ensure patients have access to diagnostic services and on-going care Provide opportunities for connection and patient community Fund research into effective treatments for NKH with our research partners Fundraise to support the above activities Find out more about NKH and our charity at www.mikaerefoundation.org The Mikaere Foundation is looking for new trustees to expand the skills within its board, to help guide strategy, governance and growth. We’re looking for someone with strategy and/or finance/investment experience - whether in a professional, voluntary, or community setting - who is confident supporting and guiding others. You don’t need to have been a trustee before or worked in the charity sector. You should be A strategic thinker who can help guide decision-making A collaborative team player who encourages open discussion Organised and proactive, with a willingness to get involved Passionate about supporting children, families, and community Skills in finance/investment, strategy, fundraising, or recruiting volunteers would be especially welcome, but we value a wide range of experiences and backgrounds. Alongside the relevant experience, we are looking for someone who able to commit to the Mikaere Foundation\'s charitable objectives and shares our passion for providing a future for children with NKH. You would be open and friendly, willing to be hands-on, creative, bring a fresh perspective putting forward new ideas and innovation. The role can be carried out remotely, and we welcome applications from people across the UK.This is a voluntary unpaid role with any reasonable expenses paid.
Seniority level
Seniority level
Not Applicable
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Non-profit Organizations
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#J-18808-LjbffrVolunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation in London employer: The Mikaere Foundation
The Mikaere Foundation is an exceptional employer for those looking to make a meaningful impact in the lives of children with rare diseases. With a collaborative and supportive work culture, we value diverse experiences and encourage proactive involvement in our mission. As a trustee, you will have the opportunity to guide strategic decisions and contribute to vital initiatives, all while working remotely from anywhere in the UK, making it a flexible and rewarding role.
StudySmarter Expert Advice🤫
We think this is how you could land Volunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation in London
✨Tip Number 1
Familiarise yourself with the Mikaere Foundation's mission and values. Understanding their goals and the specific challenges faced by children with NKH will help you articulate how your skills can contribute to their strategy and growth.
✨Tip Number 2
Network with current or former trustees of similar charities. They can provide insights into the role and share experiences that may help you understand what is expected and how you can make a meaningful impact.
✨Tip Number 3
Prepare to discuss your strategic thinking and collaborative skills in detail. Think of examples from your past experiences where you've successfully guided decision-making or worked as part of a team to achieve a common goal.
✨Tip Number 4
Show your passion for the cause during any discussions. Being genuinely enthusiastic about supporting children and families affected by NKH will resonate well with the foundation and demonstrate your commitment to their objectives.
We think you need these skills to ace Volunteer Charity supporting rare disease in children seeks Trustee | The Mikaere Foundation in London
Some tips for your application 🫡
Understand the Role:Before applying, take the time to thoroughly understand the responsibilities and expectations of a trustee at The Mikaere Foundation. Familiarise yourself with their mission and the specific challenges faced by children with NKH.
Highlight Relevant Experience:In your application, clearly outline any relevant experience you have in strategy, finance, or community work. Even if you haven't been a trustee before, showcase how your skills can contribute to the foundation's goals.
Show Your Passion:Express your passion for supporting children and families affected by rare diseases. Use personal anecdotes or motivations that demonstrate your commitment to making a difference in this area.
Tailor Your Application:Make sure to tailor your CV and cover letter specifically for this role. Address how your skills align with the needs of The Mikaere Foundation and how you can help guide their strategy and growth.
How to prepare for a job interview at The Mikaere Foundation
✨Show Your Passion
Make sure to express your genuine passion for supporting children and families affected by rare diseases. Share any personal experiences or motivations that drive you to contribute to the Mikaere Foundation's mission.
✨Highlight Relevant Experience
Even if you haven't been a trustee before, emphasise any strategy, finance, or community involvement experience you have. Be specific about how these skills can benefit the foundation and its goals.
✨Demonstrate Collaborative Spirit
The role requires a team player who encourages open discussion. Prepare examples of how you've successfully worked in teams, facilitated discussions, or supported others in decision-making processes.
✨Be Proactive and Organised
Show that you're proactive and organised by discussing how you plan to get involved with the foundation's activities. Mention any ideas you have for fundraising or community engagement that could help the charity grow.
