Motor Neuron Disease Coordinator

This Band 7 allied health professional post sits in the Southampton MND Care Centre team at University Hospital Southampton NHS Foundation Trust, a 24-month fixed-term role funded short term. The post holder carries a caseload of people with motor neuron disease and acts as the single point of contact for patients and families within the Care Centre. Work spans specialist clinics, multidisciplinary meetings across the Wessex region and NICE-standard audit, with part of the service funded through a partnership with the MND Association. Applicants need current HCPC registration and postgraduate-level training in their speciality.

What the job involves

• Hold a clinical caseload of people with MND, providing supportive care with the Lead MND Coordinator and regional team
• Act as single point of contact for patients with MND and their families within the Care Centre
• Carry out post-diagnostic visits for newly diagnosed patients, giving advice, emotional support, NICE-based clinical advice and onward MDT referrals
• Attend specialist regional MND clinics and MND coordinator-led MDT meetings across the region
• Take responsibility for defined service objectives within the clinical improvement plan, including the MND Association grant conditions
• Take part in management review meetings and the regular NICE audit
• Represent the MND Coordination Team at relevant meetings
• Deliver MND-specific training to UHS and regional colleagues and advise on MND care
• Support the MND research pathway alongside the Senior MND Research Nurse

Qualifications

• Degree or equivalent in a relevant AHP profession
• Masters level or evidence of equivalent postgraduate training in the defined speciality
• Evidence of commitment to ongoing training and development

Registration & licences

• Current HCPC registration

Experience

• Recent experience as a clinical specialist in the relevant clinical area
• Extensive knowledge and highly specialist expertise in the specialist area
• Acting as an expert within a multi-professional team
• Presentations and public speaking
• Project planning and audit delivery
• Mentoring or supervising students, assistants or junior staff, and involvement in student training

Skills & knowledge

• Understanding of clinical governance and its implications for service delivery
• IT and keyboard skills, e.g. Microsoft Word

Checks & eligibility

• Full driving licence and use of a vehicle for travel to regional clinics

Other

• Flexible approach to working hours, including an extended working day and occasional out-of-hours and weekend working
• Health and physical abilities sufficient for the post, with reasonable adjustments where needed
• Alignment with Trust values: Patient First, Working Together, Always Improving

Nice to have

• Clinical supervisory skills course
• Membership of a relevant professional organisation and specialist groups
• Appraisal training
• Management qualification or development, e.g. Foundation Management course
• Experience of leading or co-ordinating audit or research work
• Generic service development skills such as report writing and policy development and implementation
• Ability to undertake appraisals and KSF reviews for band 4, 5 and 6 staff

What’s offered

• Access to NHS discounts
• Minimum of 35 days paid holiday, pro rata
• Generous pension scheme
• Consideration of flexible working requests
• Learning and development opportunities
• Supervision and mentorship from the Lead MND Coordinator and Wessex Neurology Service colleagues

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