Community & Individual Giving Officer

Location: Remote (with occasional travel to meetings and events) Application process: Please submit your CV and a covering letter outlining your interest in this role and how your skills and experience meet the person specification below.

Please send to sarah@thelilyfoundation. org. uk by 21 st August 2026.

Please note: only applications submitted this way will be considered.

Background The Lily Foundation is the UK’s leading charity dedicated to advancing research, raising awareness and providing support for individuals and families affected by mitochondrial disease (mito).

Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Community fundraising is at the heart of Lily’s success.

Every year, hundreds of families, friends and local communities come together to raise funds in support of loved ones affected by mitochondrial disease.

Alongside this, we’re beginning to grow our Individual Giving, Regular Giving and Legacy fundraising programmes, helping more people support Lily in ways that suit them.

As we continue to grow, we’re looking for someone who can build strong relationships with our supporters, help bring fundraising ideas to life and ensure everyone who chooses to support Lily has an outstanding experience.

About the role This is a varied and rewarding role supporting the delivery of Lily’s community fundraising and individual giving programme.

You’ll be the main point of contact for many of our amazing supporters, helping individuals, families and community groups make the most of their fundraising.

You’ll also play a key role in developing Lily’s Teams initiative, which brings together families and friends fundraising in honour or memory of someone affected by mitochondrial disease.

Alongside community fundraising, you’ll support the delivery of Lily’s emerging Individual Giving, Regular Giving and Legacy fundraising activity, helping to develop and deliver supporter journeys, campaigns and communications that encourage long-term engagement.

Working closely with the Senior Public Fundraising Manager and colleagues across fundraising and marketing, you’ll play an important part in helping more people discover, support and stay connected with The Lily Foundation.

If you’re someone who enjoys building relationships, getting things done and making supporters feel valued, we’d love to hear from you.

Key responsibilities Lead the day-to-day delivery of Lily’s community fundraising programme, supporting individuals, families and community groups to organise their own fundraising activities.

• Develop and grow Lily’s Teams initiative, supporting families and friends fundraising in honour or memory of someone affected by mitochondrial disease with sensitivity, empathy and excellent supporter care.
• Build strong relationships with community fundraisers, providing practical advice, encouragement and fundraising resources to help maximise income and supporter satisfaction.
• Support the planning and delivery of Lily’s community fundraising campaigns, appeals and fundraising products, working closely with colleagues across fundraising and marketing.
• Help develop and deliver supporter journeys for community fundraisers, regular givers and other supporters, encouraging long-term engagement and repeat support.
• Support the development of Lily’s Individual Giving, Regular Giving and Legacy fundraising activity through campaign delivery, stewardship and donor communications.
• Identify opportunities to grow community fundraising and Individual Giving income by encouraging repeat fundraising, in-memory giving, Regular Giving and other longer-term ways of supporting Lily.
• Maintain accurate records on the CRM system (Donorfy), ensuring supporter information is up to date and using data to monitor activity and improve performance.
• Prepare regular reports and updates for the Senior Public Fundraising Manager, identifying trends, opportunities and areas for improvement.
• Work collaboratively with colleagues across fundraising, marketing and operations to deliver joined-up campaigns, communications and supporter experiences.
• Represent The Lily Foundation professionally and enthusiastically, acting as an ambassador for the charity and building positive relationships with supporters and partners.

Person specification We’re looking for someone who enjoys working with people and takes pride in delivering an excellent supporter experience.

You’ll be organised, proactive and happy managing a variety of different activities, while always keeping supporters at the heart of what you do.

Essential experience and skills

• Experience working in community fundraising, individual giving or another supporter-facing fundraising role.
• Experience building and maintaining positive relationships with supporters or volunteers.
• Excellent communication skills, both written and verbal, with the ability to adapt your style to different audiences.
• Strong organisational skills, with the ability to manage multiple priorities and deliver work to a high standard.
• Experience planning or co-ordinating fundraising activities, campaigns or events.
• Experience using CRM systems to manage supporter data and monitor activity.
• A proactive, positive approach, with the confidence to work independently while contributing as part of a wider team.

Good attention to detail and the ability to identify opportunities to improve supporter experience and fundraising performance.

Desirable

• Experience supporting Regular Giving, Individual Giving or Legacy fundraising.
• Experience working with people affected by serious illness, disability or bereavement.
• Knowledge of fundraising best practice and the Fundraising Code of Practice.