Research Manager of Patient Programmes

Job Title: Research Manager of Patient Programmes

Salary: £42,000-50,000 per annum (depending on experience)

Location: London-based office & home (flexible working, with minimum 2 days per week in London office) with some requirement to travel to attend meetings/training in the UK and overseas

Hours per week: 37.5 (full-time role)

Reporting to: Director of Patient and Clinical Research Programmes

Contract: Fixed term contract – 12 months (6w notice period) (ideal start date in August/September)

Our mission

Our mission is to lead new and determined efforts to find cures for Follicular Lymphoma (FL). The aim of all our programmes is to accelerate a transformative change in scientific research that will lead to better treatments and cures for FL patients. In choosing what work to do we are solely focused on output and impact.

We’re at a crucial point in our search for a cure for follicular lymphoma. Our pioneering research will lead to transformational treatments and our science is on the verge of future cures. With more support, we can radically reshape the future for everyone affected by follicular lymphoma.

The role

We are looking for an energetic and proactive individual to join our friendly team. As Research Manager of Patient Programmes, you'll have a crucial role in advancing our mission. A central focus of this role is to develop and lead patient-centred educational programs, webinars, and content that ensure patients are well-informed, actively engaged, and empowered throughout their journey. You will also play a key role in strengthening the Foundation’s connection with patients and advocacy groups, ensuring their voices are meaningfully reflected in our research agenda and broader mission. A critical and growing area of work for the Foundation is the systematic gathering and use of patient insights and data. This role will help shape and deliver that work, ensuring that lived experience informs everything we do, from research to support initiatives.

You will also lead the project management of our scientific events from planning through to delivery, ensuring they run smoothly, on time, and within budget. You’ll play a key role in delivering high-quality, engaging events that foster collaboration and advance knowledge in the field.

Key responsibilities

Strengthening patient engagement and education

• Education: Lead the delivery of impactful, patient-centred educational initiatives such as webinars, polls, and video content to inform and empower people living with FL, their families, and carers, and align with the Foundation’s mission to accelerate progress toward cure.
• Strategy Support: Support the Director of Patient and Clinical Research Programmes to develop and implement a long-term patient strategy that drives lasting impact and supports the Foundation’s mission to find a cure.
• Partnership Development: Build and maintain strong relationships with FL patients, advocacy groups, and other stakeholders to ensure patient perspectives shape our programmes and research priorities with a clear line of sight to cure.
• Insights: Lead the systematic collection and analysis of patient insights and data to inform Foundation strategy, research funding, programme design and acceleration to cure.
• Strengthen the Patient Voice and Community Engagement: Collaborate with the marketing and communications team to ensure the patient voice is heard and reflected in content, using accessible language and social media to drive engagement and connection across the FL community. Champion the integration of lived experience across the Foundation’s work, helping to ensure that real-world needs and voices are reflected in our outputs and outcomes.
• Impact Measurement and Evaluation: Support in the design and lead the delivery of impact measurement frameworks to assess the effectiveness of patient engagement, education initiatives, and programme outcomes.

Planning and management of scientific events

• Scientific Event Management: Lead the end-to-end project management of scientific events, conferences, and symposiums, ensuring smooth execution, timely delivery, and alignment with strategic goals.
• Patient Voice Integration: Ensure the patient voice is actively integrated into event planning and content, fostering meaningful collaboration between researchers, clinicians, and the patient community.
• Event Content Development and Impact Reporting: Coordinate development of workshop and conference materials, and support comprehensive outcome reporting to capture key insights and inform future initiatives.

Other duties

• Collaborate with the fundraising team to develop materials for engaging donors. Provide research insights and data to support fundraising efforts, grants and donor communication.
• Work in alignment with the Foundation’s values and maintain the reputation and standing of the Foundation.
• Ensure confidentiality is always maintained and adhere to General Data Protection Regulations across all areas of work.
• Carry out any other duties within the scope and purpose of the role as requested by their line manager.

Who we are looking for

We are seeking an energetic and empathetic individual with a proven track record of working closely with patient communities, particularly within cancer or related health fields. The ideal candidate will be passionate about amplifying the patient voice and ensuring lived experience drives research and education efforts.

Key attributes include:

Essential criteria:

• A minimum of 5-10 years of experience in the cancer or a related field.
• BSc essential, Masters degree/PhD in the medical or related field desirable.
• Experience leading patient-centred initiatives, educational programmes, or events that inform and engage the patient community.
• Demonstrated ability to collaborate closely with leadership to develop and implement long-term patient strategies that create meaningful, lasting impact.
• Solid understanding of clinical research and how patient insights can accelerate progress toward improved treatments and cures.
• Experience in project management and coordinating multifaceted programmes or events.
• Strong relationship-building skills with patient communities, advocacy groups, industry and other diverse stakeholders to effectively incorporate patient perspectives into programme design and research priorities. Experience in qualitative or mixed methods research desirable.
• Experience in systematically collecting, analysing, and applying patient insights and data to inform organisational strategy, research funding decisions, and programme development.
• Passion for championing patient lived experience and ensuring it is embedded across all aspects of organizational work, from research to education and support initiatives.
• Likely to have worked in non-profit sector or medical research sector.

We are looking for someone who believes deeply in the power of patient voices to transform research and care and is excited to help drive lasting impact for the follicular lymphoma community.

Hours of work and holidays:

This is a full-time role with working hours generally surround 9-5 Monday to Friday.  It should be noted that some events will take place over weekends and Bank Holidays when your presence will be required, which will be compensated with time in lieu. 

Please also find below a summary of the FLF UK benefits:

• 25 days annual leave (FTE), plus bank holidays
• Hybrid, flexible working.
• Enhanced sick pay – up to 10 fully paid sick days per year
• Nest pension scheme
• Group Life Insurance, which includes:
  • Day-to-day wellbeing support
  • Later-life care support
  • Virtual GP access
  • Bereavement counselling
  • Flexible hybrid working
  • Emotional and practical support