Chief Executive Officer (Permanent, Part Time)

SarcoidosisUK is a small charity with big ambitions! We want to make a difference to the lives of those affected by sarcoidosis in the UK by providing information and support, raising awareness and undertaking research into treatments and a cure. We currently support over 9,000 people online and have strong relationships with both clinicians and patients. The charity receives no government funding, generating its income only from personal and corporate donations, grants, legacies and merchandise sales. Funds raised are used to provide support services, grow awareness, operate the Nurse Helpline, and fund research activities. The need for support is growing, and we must raise £250,000 each year, part of this will be the Fundraising Executive's responsibility.

This is a varied role for someone who is enthusiastic and enjoys working with people managing multiple projects and a wide variety of tasks. No day is the same! Ideally, you will have experience working in a fundraising role and be looking for an opportunity to broaden and deepen this. However, we will also consider applicants who have a background working in any community, events or relationship-led role.

We're particularly keen to talk to you if you:

• enjoy talking to people and building genuine relationships.
• have good attention to detail, are organised and comfortable with data.
• are proactive, able to work on your own initiative and able to spot opportunities and make the most of them.
• feel confident talking to supporters, stakeholders and community groups.
• are interested in our charity and are keen to make a major impact for people who live with sarcoidosis.

The staff team is small (currently just three) which requires a flexible approach, including participating in trustee meetings (with time off in lieu) leading to a high-level understanding of the charity. You will have the opportunity to present your views and opinions on fundraising and events and build close relationships with the Chair and trustees.

Duties and Responsibilities

Work closely with the Senior Executive and Support Services Manager in a close-knit team, as needed, so that SarcoidosisUK can continue to deliver a quality experience to patients and their supporters whilst growing income and expanding fundraising activities.

Main aspects of the role include:

• Fundraising (85%)
• Community fundraising through events, engaging volunteer fundraisers and managing all aspects of the supporter journey.
• Attending events and motivating participants (time off can be taken in lieu).
• Devising campaigns and activities to raise funds, and publicising through social media, our website and direct marketing.
• Identifying, applying to, and managing relationships with grant giving organisations.
• Researching and implementing innovative ways to fundraise.
• Building relationships with those affected by sarcoidosis and major donors with the emphasis on high quality and enduring relationships.
• Managing supporter database and using data to develop insights and generate new and recurring income.
• Social Media and Website (15%)
• Managing and expanding the websites content (WordPress).
• Maintaining social media content across the main platforms (Meta, X, YouTube and LinkedIn) using our content management tool (Buffer) and designing artwork (Canva).
• Managing merchandise through the online store (WordPress, Stripe and Woocommerce).
• Contributing ideas and material to our monthly newsletter and other communications.

And any other duties as reasonably required to support the charity. The role is hybrid and flexible, with two days per week based at our office in Vauxhall, London. A DBS check will be required.

Benefits:

• Salary £30,000 - £32,000 subject to experience.
• Working days Monday to Friday 9am - 5pm with a 1 hour lunch break.
• Employer pension contribution 3%.
• Paid holiday 25 days in a calendar year (plus bank holidays), increasing by 1 day per year after 3 years to a maximum of 28 days (up to 5 days can be held over until 28 February).
• Notice period 2 months.

If you would like to know more about the charity and this role, please contact Graham Bloye, Senior Executive who will be pleased to talk to you. Applications should include a CV and a brief covering letter outlining the skills and experience you would bring to the role telling us why you are personally interested in working for a charity which supports the sarcoidosis community across the UK. Applications close at noon on Monday 17 August 2026.