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- Tasks: Lead a small charity, shaping strategy and driving impactful services for families affected by Dravet Syndrome.
- Company: A dedicated health charity focused on improving lives impacted by rare epilepsy.
- Benefits: Home-based role with travel, flexible hours, and the chance to make a real difference.
- Other info: Opportunity to work collaboratively with diverse stakeholders and represent the charity at events.
- Why this job: Be a part of a meaningful mission, leading change in a growing organisation.
- Qualifications: Senior leadership experience in charity or non-profit sectors, preferably in health or rare diseases.
The predicted salary is between 60000 - 80000 £ per year.
About DSUK
Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome. Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD. Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
Role Overview
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey. As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement.
Responsibilities
A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
Qualifications
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
Application Process
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
EEO Statement
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Working Conditions
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
CEO in London employer: Prospectus
Contact Detail:
Prospectus Recruiting Team
StudySmarter Expert Advice 🤫
We think this is how you could land CEO in London
✨Tip Number 1
Network like a pro! Reach out to people in the charity sector, especially those involved with health and rare diseases. Attend events, join online forums, and don’t be shy about asking for informational interviews – it’s all about making connections that could lead to opportunities.
✨Tip Number 2
Show your passion! When you get the chance to chat with potential employers or stakeholders, make sure to express why you care about the cause. Share personal stories or experiences that connect you to Dravet Syndrome or similar challenges – it’ll make you memorable!
✨Tip Number 3
Be proactive! Don’t just wait for job openings to pop up. Research charities like DSUK and reach out directly to express your interest in future roles. A well-timed email can put you on their radar before they even start the hiring process.
✨Tip Number 4
Utilise our website! We’ve got loads of resources and tips to help you prepare for interviews and networking. Plus, applying through our platform gives you a better chance of standing out – so don’t miss out on that opportunity!
We think you need these skills to ace CEO in London
Some tips for your application 🫡
Tailor Your CV: Make sure your CV reflects the specific skills and experiences that align with the CEO role at DSUK. Highlight your leadership experience in the charity sector and any relevant work with rare diseases or patient advocacy.
Showcase Your Impact: When detailing your previous roles, focus on the impact you've made. Use quantifiable achievements to demonstrate how you've scaled organisations or improved services, as this will resonate well with our mission at DSUK.
Be Authentic: Let your personality shine through in your application. We’re looking for a collaborative leader, so share your values and what drives you to make a difference in the lives of those affected by Dravet Syndrome.
Apply Through Our Website: To ensure your application is seen, please submit your CV through our website. This helps us keep track of all applications and makes the process smoother for everyone involved.
How to prepare for a job interview at Prospectus
✨Know Your Impact
Before the interview, take some time to research how your leadership experience aligns with the mission of DSUK. Be ready to discuss specific examples of how you've driven growth and impact in previous roles, especially in the charity or health sectors.
✨Build Relationships
As a CEO, relationship-building is key. Prepare to share your strategies for developing strong partnerships with stakeholders. Think about how you can demonstrate your ability to connect with families, professionals, and other charities during the interview.
✨Showcase Your Vision
Be prepared to articulate your vision for the future of DSUK. Consider what strategic initiatives you would prioritise in the first few years and how you would work with the Board of Trustees to implement them. This shows you're not just a leader but a forward-thinker.
✨Emphasise Adaptability
Given the complexities of leading a small charity, highlight your adaptability and resilience. Share examples of how you've navigated challenges in past roles and how you plan to foster a culture of learning and continuous improvement within DSUK.