Neurodiversity expert by experience (Child and Young People)

Job Summary

The successful applicant will:

1. be a family member or carer of a neurodivergent child or young person. They may be both neurodivergent and a family member or carer of a neurodivergent child or young person.
2. bring another viewpoint that comes from a person’s own experience.
3. be willing to share their lived experience in a way that promotes positive development and change, both in terms of service development, and for individual children and their families.
4. play a key part in the planning and designing of the new Neurodiversity in Enfield team for under 6s.
5. Help the team understand better the views and experiences of families of neurodivergent children.
6. liaise with families and carers to identify their needs and to reassure them that the team will support their child.
7. share appropriate information about accessing services and local support.
8. be expected to attend need-specific clinics (e.g. sleep, toileting, feeding, etc.) to support parents and carers, guide them as to where to access the services, and provide emotional support.

Main Duties of the Job

We would hope that the Parent Worker could draw upon their personal experience and knowledge of parenting or caring for a child with a neurodevelopmental condition to:

1. Inform clinical practice, i.e., the way the team is working.
2. Offer support in the facilitation and development of parenting support groups.
3. Coordinate and facilitate support groups for parents and participate in facilitating parenting groups and courses.
4. Share/teach strategies with other parents.
5. Provide valuable contributions to regular steering group meetings and be involved in further developing the parent worker role in the team.

About Us

North Mid is part of North Central London integrated care system – consisting of the NHS and Local authority organisations in Camden, Islington, Barnet, Enfield and Haringey. As with other ICS’s, we are working increasingly closely with partners and indeed many of our financial and performance objectives are measured at this system level. Whilst all organisations remain as standalone, statutory bodies, we have an ICS infrastructure for making shared decisions and agreeing shared approaches.

We are proud of our staff and want to ensure their training allows them to provide excellent clinical care. We are also a training unit for medical students from UCL and St George’s University Grenada and for nursing and midwifery students from Middlesex and City Universities.

Take a tour of our hospital here .

Date Posted: 08 January 2025

Pay Scheme: Agenda for Change

Band: Band 4

Salary: £26,530 to £29,114 a year pro-rata per annum inclusive of HCAs

Contract: Permanent

Working Pattern: Part-time

Reference Number: 393-NMUH-2068

Job Locations:

St Michael’s, Cedar House, Gater Drive, London, N2 0JB

Job Description

Job Responsibilities

Communication and Coordination

1. Serve as a point of contact between parents and carers and healthcare providers as directed.
2. Facilitate effective communication between parents and carers and healthcare providers to ensure seamless service delivery.
3. Attend clinics for the neurodivergent population and their families to provide advice, guidance, and emotional support for families and carers, as pre-agreed and within the remits of the role.
4. Share any relevant information from parents and carers with the clinical teams during the triaging process to ensure timely and effective needs-led support can be offered.

Knowledge Base

1. Maintain excellent knowledge of local resources, both within the NHS and outside (e.g. education, EASA, voluntary sector).
2. Liaise with neurodivergent people and their families to ensure the neurodiversity team continues to provide the support required by the community.
3. Keep up to date with current thinking in the neurodivergent community, to include preferred terminology, types of input, environmental adaptations, and other relevant preferences.

Administrative Support

1. Ensure that all available resources are coordinated effectively.
2. Manage diaries and schedules, appointments, and meetings independently.
3. Maintain accurate records, files, and documentation related to the role.

Data Management

1. Collect, compile, and analyse data related to roles and responsibilities.
2. Keep accurate records of all conversations with families and carers.

Compliance and Confidentiality

1. Ensure compliance with all relevant regulations, policies, and procedures.
2. Make suggestions for updates to departmental standard operating procedures and guidelines.
3. Maintain confidentiality of information and adhere to data protection regulations.

Support and Development

1. Assist in the orientation and training of students and volunteers to the team.
2. Support continuous professional development initiatives for the neurodiversity team.
3. Use your initiative in all aspects of your work to efficiently prioritise tasks and meet deadlines, as the service line requires.
4. Regularly liaise with the Neurodiversity Team Leader and Team.
5. Ensure compliance with Trust policies and local protocols for Data Protection, Health and Safety, Security, and Fire Safety within the administration team.

Person Specification

Attributes/Skills Essential

• Good standard of education – equivalent of 5 GCSEs including Maths and English.
• Excellent communication skills, in person and on the phone/video calls.
• Computer literate, with extensive keyboard skills.
• Good knowledge and proficiency of Microsoft packages to include Word, Excel, PowerPoint, Outlook.
• Ability to prioritise tasks effectively and under pressure.

Desirable

• Further learning relating to Neurodiversity.
• Previous experience working or volunteering in a similar role.
• Proficiency in Trust systems including Rio and Healthroster.
• Knowledge of NHS service provision including pathway of care.
• Experience of supporting the neurodivergent community either professionally or voluntarily.
• Knowledge of another language/languages (sufficient to converse with parents of that language).

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Employer Details

Employer Name: North Middlesex University Hospital NHS Trust

Address: St Michael’s, Cedar House, Gater Drive, London, N2 0JB

Employer’s Website:

#J-18808-Ljbffr