Information Governance and Data Systems Specialist (Digital) in London

We are looking for someone to join our Digital team as an Information Governance and Data Specialist.

If you would like to contribute to making a difference for a much-loved charity, we would love to hear from you. Please contact Rebecca Naden on 0161 702 8181 or email rebecca.naden@moyacole.org.uk if more information is required.

Applicants must be authorised to work in the UK. We are not able to offer sponsorship at this time. The successful candidate will be subject to a DBS Check at the level appropriate to the role, the cost of which is covered by the hospice. Any post holder within the organisation will be expected to undertake safeguarding training appropriate to their role and adhere to safeguarding policies and procedures. All staff must work in accordance with their statutory roles and responsibilities in relation to safeguarding in accordance with the Working Together to Safeguard Children 2023, The Care Act 2014, and Prevent Duty 2015.

We reserve the right to close and interview prior to the dates outlined below.

• Closing Date: 13th February 2026
• Interview Date: 26th February 2026

Are you passionate about ensuring information is managed safely and effectively? Do you enjoy solving complex problems, improving processes, and supporting teams to work smarter with digital systems? Join our Hospice and be at the heart of a role that combines digital expertise, information governance, and meaningful impact. You'll work across multiple hospices, helping to safeguard sensitive data, optimise systems, and ensure we deliver the highest standards of care and compliance. This is your chance to bring your curiosity, initiative, and analytical skills to a role that truly matters.

At Moya Cole, there's one thing that motivates us, and that’s providing excellent care and support to those living with or affected by life-limiting illnesses. We're continuously developing our plans for delivering outstanding person-centered care that is innovative and evidence-based and to ensure Moya Cole is in the best shape possible for future generations. You'll be challenged, inspired and empowered to help us achieve our purpose and to play your part in making a difference.

Key Benefits

• 35 days annual leave rising to 37 after 5 years and 41 after 10 years (inc. bank holidays, pro rata for part-time employees)
• Buy an additional week annual leave (pro rata for part-time)
• Health cash plan
• Contributory pension scheme up to 7% matched contribution (or the ability to continue with a previously held NHS pension (subject to making contributions into the scheme in the previous 12 months)
• Life cover
• Free parking
• Discounted meals on site
• Meaningful work, making a difference in the lives of others
• Opportunity to develop your leadership skills within a structured development framework
• IIP Platinum employer creating the right environment for everyone to thrive and reach their potential

Job Responsibilities

• Support the development and implementation of information governance policies and procedures.
• Support Information Asset Owners with data flow mapping, data protection impact assessments, and information security risk assessments.
• Manage information requests and rights requests, ensuring compliance with legal timeframes.
• Maintain governance documentation including registers and logs.
• Provide training and advice on IG best practices to staff and stakeholders.
• Investigate incidents and breaches, supporting managers as required.
• Lead IG audits, identify non-compliance, and support action plans.
• Prepare and present KPI data and audit reports for the Information Assurance Board.
• Act as the first point of contact for IG queries from internal and external stakeholders.
• Provide consultation to partner hospices on IG and digital systems.
• Support configuration and optimisation of digital systems for data quality, accuracy, and ease of use.
• Deputise for the Data Protection Officer and Data Systems Manager as needed.

Essential Skills

• Degree or equivalent experience.
• Knowledge of Data Protection legislation and IG frameworks, ideally within healthcare or charity sectors.
• Strong digital literacy: able to analyse, interpret, and communicate information in digital environments.
• Ability to work independently, managing priorities and adapting to changing deadlines.
• Clear communicator, capable of explaining complex IG concepts to diverse audiences.
• Highly organised with strong attention to detail.
• Discreet and trustworthy when handling sensitive information.
• Collaborative, supportive, and positive team player.
• Flexible and willing to travel across sites as needed.
• Curious, proactive, and confident in asking questions to improve processes and compliance.

Desirable Skills

• Awareness of database structures and data management.

Person Specification

• Qualifications: Degree or equivalent experience.
• Experience: Knowledge of Data Protection legislation and IG frameworks, ideally within healthcare or charity sectors.
• Strong digital literacy: able to analyse, interpret, and communicate information in digital environments.
• Ability to work independently, managing priorities and adapting to changing deadlines.
• Clear communicator, capable of explaining complex IG concepts to diverse audiences.
• Highly organised with strong attention to detail.

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Employer details

Employer name: Moya Cole Hospice

Address: St Ann's North Road, Heald Green, Cheadle, Cheshire, SK8 3SZ