Clinical Data Translation Lead in London

Location: London

Job Type: Permanent role, Hybrid working (3 days in the office, 2 days working from home)

Are you passionate about making life science life changing and delivering impact for patients? We want to hear from you.

About the role

An exciting opportunity has arisen to join the evolving health data function at LifeArc, leading on delivery of our new Health Data Strategy. The post will support the translation of health data into tangible impact for patients affected by rare disease and resistant infections. This role provides senior health professional and scientific leadership to connect LifeArc’s Health Data Strategy with the UK NHS and wider international health data ecosystem, ensuring that large‑scale data assets are translated into high‑impact translational programmes. The postholder leads the shaping and delivery of data‑enabled programmes, partnerships and roadmaps, using deep understanding of healthcare systems and health data to enable clinical trials, evidence generation, and progression of diagnostics, therapeutics and digital health tools. The role operates at the interface between clinical insight, data science and strategy, translating complex technical considerations into executable programmes and senior‑level decisions. Through clinical credibility and external influence, the postholder builds trusted relationships across national health data initiatives, secures access to priority data assets, and ensures that data‑enabled programmes are clinically robust, patient‑centred, and deliver impact.

Key responsibilities include:

• Health Data Ecosystem Engagement

• Act as LifeArc’s scientific operational ambassador to NHS data programmes, including Secure Data Environments (SDEs), disease and patient registries, and large‑scale national initiatives.
• Establish and maintain relationships with senior leaders and governance bodies so that LifeArc is recognised as a trustworthy partner.
• Influence development and use of data infrastructure to ensure rare disease needs are represented.
• Horizon scan for potential data assets nationally and internationally that could further our translational goals.
• Partner with our science teams to identify and progress opportunities where health data can improve outcomes in rare disease.
• Support LifeArc’s Translational Centres to unlock secure data access and accelerate evidence generation.
• Partner with LifeArc’s AI/ML team on regulatory and clinical‑safety pathways for AIaMD/SaMD, including considerations such as UKCA/MHRA expectations, clinical safety (e.g., DCB0129/DCB0160), data quality, bias, external validation, and post‑market planning.
• Utilise technical literacy in health data science, clinical coding, and data architectures to interrogate assumptions, assess feasibility, and guide design choices, without undertaking hands‑on data analysis.
• Define programme milestones, risks, dependencies, and RACI with partners; maintain line‑of‑sight to delivery without taking on hands‑on data operations.

Essential experience required:

• Deep understanding of health data programmes, including SDEs, governance frameworks, interoperability standards, clinical coding, and national initiatives.
• Demonstrable experience operating independently in complex environments, providing senior level advice and recommendations within an agreed strategic framework.
• Established credibility and professional network within the health data ecosystems, with experience engaging senior stakeholders and influencing roadmaps.
• Experience shaping multi‑party programmes and partnerships, aligning opportunities to organisational strategy.
• Familiarity with the development and deployment of AI and digital health tools in healthcare settings sufficient to engage credibly with technical and regulatory colleagues.
• Significant understanding of clinical workflows (e.g., Trusts, ICBs, national bodies).

Education:

• Qualification and experience as a registered healthcare professional (e.g. a doctor, nurse, or pharmacist).
• Postgraduate qualification or formal training in a relevant field such as clinical research, population health, digital health, health informatics, epidemiology, or translational science.
• Formal training or certification relevant to clinical research, health data governance, or digital health regulation (e.g. clinical safety, health informatics, or research governance).

About us:

LifeArc is a not‑for‑profit life science organisation, leading the way for change in rare diseases in the UK and supporting promising initiatives in global health. We seek out research in areas of unmet need that has great potential, providing support to help it become breakthroughs that change lives.

What we can offer you:

Focused on finding life changing solutions for underserved patients, our people thrive in an inclusive, and supportive environment that prioritises their health and wellbeing. Our multidisciplinary approach guarantees our people growth opportunities, while our culture of innovation and collaboration drives the impact we make delivering on our purpose of ‘putting patients at the centre of everything we do’. LifeArc is committed to making our recruitment practices as inclusive as possible and developing a culture that values differences. As a Disability Confident Employer, we guarantee an interview to candidates with a disability or long‑term health condition who meet the essential criteria for the role. Please note that in certain situations, such as high volumes of applications, it may not be practical to interview all eligible candidates. In these cases, we may need to select those who best meet the essential criteria. (At LifeArc, the Disability Confident Scheme’s ‘minimum criteria’ is referred to as ‘essential criteria’)

Salary will be determined by qualifications and experience along with other exceptional benefits. Because we understand everyone has different requirements, our flexible benefits allow you to choose those which are important to you. Our pension scheme offers employer contributions of up to 12%, private health insurance, and annual leave of 31 days PLUS bank holidays.

Don’t meet every single requirement? Studies have shown that women and people from minority ethnic backgrounds, for example, are less likely to apply to jobs unless they meet every single qualification. At LifeArc we are dedicated to building a diverse, inclusive, and authentic workplace, so whatever your background or lived experience, if you’re excited about this role but your experience doesn’t align perfectly with every qualification in the job description, we encourage you to apply anyway. Our top priority is finding the best candidate, and you may be just right for this or other roles. We all have potential. At LifeArc, you’ll discover what you can really do with it.