At a Glance
- Tasks: Lead innovative rare disease programmes and drive impactful partnerships.
- Company: LifeArc, a not-for-profit life science organisation focused on rare diseases.
- Benefits: Flexible benefits, 31 days annual leave, private health insurance, and a strong pension scheme.
- Other info: Join a diverse team committed to innovation and patient-centred solutions.
- Why this job: Make a real difference in patients' lives while working in a collaborative environment.
- Qualifications: PhD, MD, or MSc in a relevant scientific discipline with extensive experience in life sciences.
The predicted salary is between 50000 - 65000 £ per year.
Location: London
Job Type: Permanent with a hybrid working environment
Are you passionate about making life science life changing and delivering impact for patients? We want to hear from you.
About the role
Embedded into LifeArc’s Ecosystem department, this new role will lead the delivery of rare disease portfolios and programmes, with the primary focus being on the LifeArc Rare Therapies Launch Pad (LifeArc RTLP), a high-profile, strategic initiative aimed at accelerating development, delivery and access to rare disease individualised therapies. The successful candidate will contribute to the development and execution of the Ecosystem rare disease strategy, working in close collaboration with other leaders across the organisation. The role provides leadership across complex, multi-partner portfolios, with a focus on driving high-profile, external, major rare disease ecosystem programmes and strategic partnerships, spanning rare disease therapeutic development, clinical trial delivery, regulation, market access, policy and data. The role will ensure delivery is coordinated, high quality, and aligned to organisational priorities and LifeArc’s capabilities embedded in the preclinical and clinical departments. Through strong scientific, stakeholder, and delivery leadership, the role supports translation of strategy into impactful outcomes for people living with rare diseases.
About you
Key responsibilities
- Contributing to the development of the Ecosystem rare disease strategy with a focus on the LifeArc RTLP programme, translating strategic direction into clear priorities and delivery plans
- Leading the delivery of the LifeArc RTLP and other complex portfolios and programmes, as relevant, ensuring timelines, quality standards, milestones, and outputs are achieved
- Providing portfolio-level leadership, aligning activity across multiple programmes, workstreams, and partners
- Overseeing and assuring portfolio and programme performance, proactively managing risks, dependencies, and trade-offs
- Developing and overseeing portfolio plans, budgets, and resource allocation, ensuring the effective use of internal and external capabilities
- Identifying and developing new opportunities and collaborations, preparing proposals and business cases to enable impact
- Building and maintaining strong external partnerships, acting as a credible ambassador and representing LifeArc in relevant forums
- Providing effective governance and decision support, ensuring clear reporting, performance tracking, and engagement with decision-making bodies
- Leading and developing teams through line and/or matrix leadership, fostering a high-performing and collaborative environment
- Working closely with other LifeArc leaders across functions and departments to ensure alignment and integration across the Ecosystem, Clinical and Preclinical portfolios particularly in relation to the strategic position and operational delivery of the LifeArc RTLP.
- Driving continuous improvement of delivery, strengthening processes, ways of working, and portfolio effectiveness
- Acting as a role model for LifeArc’s principles and behaviour
Essential experience required
- Extensive experience in biomedical, life sciences, or translational and clinical research environments, including experience of driving and influencing innovation in research policy
- Demonstrated ability to lead complex portfolios and multi-partner programmes relevant to rare disease
- Experience in portfolio planning, performance management, delivery oversight, and governance of complex large, multi-partners programmes
- Strong experience of matrix and team leadership, including line management
- Proven ability to build and sustain strategic partnerships, internally and externally
- Strong scientific, strategic, and analytical capability, with the ability to operate at both detail and portfolio level
- Excellent communication, influencing, and stakeholder engagement skills, including with senior leaders and in research policy
- Experience of rare disease research and innovation, in the context of therapeutic development and market access, is highly desirable
- Experience of research delivery in the NHS setting is highly desirable
Education
PhD, MD, MSc (or equivalent) in a scientific discipline of relevance (biomedical, life sciences, or related discipline)
Skills & abilities
- Ability to translate strategy into execution, aligning priorities, resources, and delivery
- Understanding of research funding and sustainability models, with relevant knowledge of this applied to rare disease being an advantage
- Highly effective leadership and influence in matrix environments
- Advanced planning, prioritisation, and organisational skills
- Strong risk management, judgement, and decision-making capability
- Clear and confident communication across scientific, operational, strategic and senior stakeholder audiences, including government and civil service representatives
- High level of scientific credibility and critical thinking
- Adaptable, resilient, and able to operate in dynamic, complex environments
About us
LifeArc is a not-for-profit life science organisation, leading the way for change in rare diseases in the UK and supporting promising initiatives in global health. We seek out research in areas of unmet need that has great potential, providing support to help it become breakthroughs that change lives. The Ecosystem department, where this role will be based, focuses on strengthening the life science ecosystem by forming and facilitating effective partnerships, expanding capabilities, scaling capacity for research and innovation, shaping national and global conversations, and addressing system barriers through innovative pathways to innovation and adoption.
What we can offer you
Focused on finding life changing solutions for underserved patients, our people thrive in an inclusive and supportive environment that prioritises their health and wellbeing. Our multidisciplinary approach guarantees our people growth opportunities, while our culture of innovation and collaboration drives the impact we make delivering on our purpose of ‘putting patients at the centre of everything we do’. LifeArc is committed to making our recruitment practices as inclusive as possible and developing a culture that values differences. As a Disability Confident Employer, we guarantee an interview to candidates with a disability or long-term health condition who meet the essential criteria for the role. Please note that in certain situations, such as high volumes of applications, it may not be practical to interview all eligible candidates. In these cases, we may need to select those who best meet the essential criteria. Salary will be determined by qualifications and experience along with other exceptional benefits. Because we understand everyone has different requirements, our flexible benefits allow you to choose those which are important to you. Our pension scheme offers employer contributions of up to 12%, private health insurance, and annual leave of 31 days PLUS bank holidays. Don’t meet every single requirement? Studies have shown that women and people from minority ethnic backgrounds, for example, are less likely to apply to jobs unless they meet every single qualification. At LifeArc we are dedicated to building a diverse, inclusive, and authentic workplace, so whatever your background or lived experience, if you’re excited about this role but your experience doesn’t align perfectly with every qualification in the job description, we encourage you to apply anyway. Our top priority is finding the best candidate, and you may be just right for this or other roles. We all have potential. At LifeArc, you’ll discover what you can really do with it.
Director, Rare Disease Network employer: LifeArc
LifeArc is an exceptional employer dedicated to transforming the landscape of rare diseases through innovative partnerships and a collaborative work culture. Located in London, we offer a hybrid working environment that prioritises employee wellbeing and professional growth, with extensive benefits including a generous pension scheme, private health insurance, and 31 days of annual leave. Our commitment to inclusivity and diversity ensures that every team member can thrive while making a meaningful impact on patients' lives.
StudySmarter Expert Advice🤫
We think this is how you could land Director, Rare Disease Network
✨Get Involved in Local Research Communities
Tap into local biotechnology meetups and research forums. These are great places to mingle with industry professionals, share your passion, and even discover unadvertised job openings. It's all about getting your face known in the field!
✨Leverage University Alumni Networks
If you're a recent grad, don’t underestimate the power of your university’s alumni network! Reach out to alumni working in biotechnology to gather tips about job openings at companies like LifeArc. You'd be surprised how willing people are to help out a fellow grad!
✨Show Off Your Projects
Curate a portfolio showcasing any research projects or internships you've completed in biotechnology. This tangible evidence of your skills can really impress employers when you chat with them at networking events or interviews. It's about making that killer first impression!
✨Stay Up-to-Date with Industry Trends
Biotech is a fast-paced field, so keeping yourself updated with the latest advancements is crucial. Attend industry conferences, webinars, or workshops to broaden your knowledge and meet potential employers. Plus, it’ll give you fantastic talking points for your interviews at places like LifeArc!
We think you need these skills to ace Director, Rare Disease Network
Some tips for your application 🫡
Show Off Your Lab Skills:In the biotechnology field, it's super important to highlight your lab experience in your CV. Be sure to mention specific techniques or instruments you've mastered (think PCR, gel electrophoresis, etc.) and any relevant projects you've worked on. This will show LifeArc that you have the hands-on skills they need.
Tailor Your Technical Skills:Make sure to emphasise your technical skills, especially those relevant to the biotechnology sector. Include any software tools or programming languages you've used, like R or Python for data analysis, which could be key for this role at LifeArc.
Craft a Compelling Cover Letter:Since this is a full-time role, your cover letter should reflect not only your passion for biotechnology but also your long-term career ambitions. Share why you're excited about the work that LifeArc does and how you envision contributing to their goals. This shows that you’re not just looking for any job, but you're genuinely invested in this opportunity.
Include Your Papers and Projects:If you've published any papers or contributed to significant projects, mention them! These documents can boost your application and provide tangible evidence of your expertise in the biotechnology field. Don’t forget to link to any relevant publications or project summaries—this can set you apart from other candidates.
How to prepare for a job interview at LifeArc
✨Brush Up on Lab Techniques
Since you're eyeing a full-time gig in biotechnology, make sure you're well-versed in the lab techniques relevant to the role. Be ready to talk about PCR, CRISPR, or any specific methods mentioned in the job description at LifeArc. You might even be asked to demonstrate your understanding of these processes.
✨Know Your Bioinformatics Tools
Get comfortable with bioinformatics tools that are commonly used in the industry, like BLAST or Bioconductor. These are key in biotechnology, and having hands-on experience or at least familiarity can set you apart. Prepare to discuss any relevant projects you've worked on, especially if they involved data analysis or genomic research.
✨Show Your Teamwork Skills
Biotech often involves collaboration across multiple disciplines. Be ready to share stories that highlight your teamwork and communication skills, especially in research projects. Think about working with different teams at university or any internships – this is where you can show how well you fit into LifeArc's culture.
✨Research Recent Biotech Innovations
Stay updated on the latest trends and breakthroughs in biotechnology. Knowing what's happening in the field can help you engage in more meaningful discussions during your interview. Bring up recent articles or advancements that excite you, especially those related to the work being done at LifeArc. This shows your passion for the industry!
