At a Glance
- Tasks: Lead data governance and management for vital genomic and clinical data assets.
- Company: Genomics England, a pioneer in genomic medicine and research.
- Benefits: 30 days holiday, flexible working, and generous family leave options.
- Other info: Join a dynamic team with opportunities for professional growth and innovation.
- Why this job: Make a real impact on healthcare by shaping the future of genomic data governance.
- Qualifications: Experience in data governance and ability to influence senior stakeholders.
The predicted salary is between 80000 - 100000 £ per year.
Genomics England is a global leader in enabling genomic medicine and research, focused on creating a world where everyone benefits from genomic healthcare. Building on the 100,000 Genomes Project, we support the NHS’s world‑first national whole genome sequencing service and run the growing National Genomic Research Library, alongside delivering numerous major genomics initiatives. By connecting research and clinical care at national scale, we enable immediate healthcare benefits and advances for the future. Our mission is to provide the evidence and digital systems so that by 2035 genomics could play a role in up to half of all healthcare interactions, whilst securing the UK’s position as the best place to discover, prove and benefit from genomic innovations.
We are accelerating our impact and working with patients, doctors, scientists, government and industry to improve genomic testing, and help researchers access the health data and technology they need to make new medical discoveries and create more effective, targeted medicines for everybody. Behind the Healthcare and Research outcomes, Genomics England delivers through designing, developing and operating complex healthcare software systems. We’re on the cusp of big changes with the real prospect of genomics becoming the fabric of everyday healthcare through the lifetime – from birth to old age.
We are looking for a Principal Data Governance Manager to provide senior leadership across data governance, data management and information stewardship, helping ensure some of the UK’s most important clinical, genomic and research data assets are governed, protected, understood and used responsibly. This is a strategic leadership role for someone who can be accountable, set direction, build organisational capability and work confidently across clinical, research, technology and corporate domains. You will play a key role in strengthening data ownership, stewardship, quality, metadata, data release and risk management across the National Genomic Research Library and Clinical Healthcare Systems.
Responsibilities
- Set data governance direction across clinical and research domains.
- Establish sustainable data ownership, stewardship and decision‑making models.
- Lead the development of data governance frameworks, standards, controls and road‑maps.
- Provide governance oversight for data release, data sharing, data tagging, participant withdrawal, metadata classification and data quality.
- Identify and manage data governance risks as services, datasets and research activity scale.
- Influence senior stakeholders through clear, evidence‑based recommendations.
- Chair or contribute to governance boards, steering groups and delivery forums.
- Build data governance capability and maturity across teams, services and communities of practice.
Qualifications
You will bring significant experience leading data governance, data management or information stewardship programmes in complex environments. You will understand how to design and embed governance frameworks that are proportionate, practical and trusted by technical and non‑technical teams.
Key Experience
- Significant experience leading enterprise data governance or data management programmes.
- Strong understanding of data ownership, stewardship, data quality, metadata and lineage.
- Experience working with sensitive, regulated or research‑critical datasets.
- Proven ability to influence senior stakeholders and lead through matrix structures.
- Experience managing organisational change and improving data management maturity.
- Knowledge of DAMA‑DMBOK or equivalent data management frameworks.
- Experience leading, coaching or developing teams and governance practitioners.
- Experience in clinical genomics, biomedical research, healthcare data, Trusted Research Environments, NHS or public sector governance, data linkage, consent, withdrawal or research data access would be an advantage.
Benefits
- Generous Leave: 30 days’ holiday, plus bank holidays, additional leave for long service, and an option to apply for up to 30 days of remote working abroad annually (approval required).
- Family‑Friendly: Blended working arrangements, flexible working, enhanced maternity, paternity and shared parental leave benefits.
- Pension
