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- Tasks: Join the Board to shape the future of epilepsy care and research.
- Company: Epilepsy Society, a leading charity making a national impact.
- Benefits: Gain invaluable experience, network with professionals, and contribute to meaningful change.
- Why this job: Make a real difference in the lives of over 630,000 people affected by epilepsy.
- Qualifications: Passion for epilepsy advocacy and relevant expertise in care, finance, or research.
- Other info: Flexible commitment with opportunities for personal and professional growth.
Location: Chalfont St Peter, Buckinghamshire (hybrid)
Remuneration: Unremunerated (expenses reimbursed)
Closing date: Friday 13th March 2026
Shape the Future of Epilepsy - Join the Board of a Charity with National Impact
Epilepsy affects more than 630,000 people in the UK - yet too many still face stigma, preventable risks, fragmented services and unequal access to treatment. As the UK’s only charity uniting world-leading research, specialist care and national advocacy, Epilepsy Society is uniquely positioned to drive change at scale.
We are entering one of the most significant periods in our history. Advances in genetics, data, diagnostics and personalised medicine are unlocking new possibilities, while the care system faces unprecedented pressure. The need for a stronger national voice - and a Board with the insight to steer it - has never been greater.
We are now seeking three exceptional Trustees to help guide our strategy, strengthen our governance and accelerate progress for the people we exist to serve.
The Opportunities
- Trustee – Care Services: You will help steer the future of specialist care for people with the most complex epilepsy. Drawing on your experience in adult social care, commissioning, supported living or regulated provision, you will help us push for higher standards, greater innovation and stronger system leadership. Your insight will shape the evolution of our services and ensure that quality, safety and dignity remain at the heart of everything we do.
- Trustee – Finance: You will play a vital role in safeguarding the long-term financial strength of the charity. Bringing strategic financial acumen, you will support robust oversight of planning, investment and risk - ensuring we have the resilience and confidence to innovate, grow and continue delivering high-quality research, care and advocacy. Your judgement will help the Society make decisions that balance ambition with sustainability.
- Trustee – Research: You will help unlock the next generation of scientific breakthroughs. With recent experience in high-quality academic or clinical research, you will guide our research direction, strengthen global collaborations and support the translation of discovery into real-world impact. You will help ensure that the Society remains at the forefront of epilepsy science - and that the knowledge we generate reaches the people who need it most.
What You Bring
- Deeply committed to the mission and values of Epilepsy Society
- Empathetic, ethical and guided by sound judgement
- Confident interpreting complex information and shaping decisions at Board level
- Collaborative, fair and diplomatic - with the courage to speak independently
- Dedicated to improving outcomes for people with epilepsy
We welcome candidates from diverse backgrounds and those stepping into their first non-executive role.
Time Commitment
Four Board meetings per year (in person), a two-day annual residential, and membership of at least one committee (three to four meetings annually). Reasonable expenses are reimbursed.
Why Now? Why You?
Joining our Board means helping shape national conversations on research, treatment and care. It means contributing your expertise to a cause where the stakes are real, the challenges are complex, and the potential for progress is extraordinary.
If you want to play a part in creating a future where people with epilepsy are understood, supported and empowered, we would be delighted to hear from you.
For an informal and confidential conversation please contact:
Oliver Startup: oliver.startup@gatenbysanderson.com
Liz Dean: liz.dean@gatenbysanderson.com
Trustees employer: EPILEPSY SOCIETY
Contact Detail:
EPILEPSY SOCIETY Recruiting Team
StudySmarter Expert Advice 🤫
We think this is how you could land Trustees
✨Tip Number 1
Network like a pro! Reach out to people in your field, especially those connected to the Epilepsy Society. Attend events, join relevant groups, and don’t be shy about sharing your passion for epilepsy advocacy.
✨Tip Number 2
Prepare for interviews by knowing the ins and outs of the Epilepsy Society. Familiarise yourself with their mission, recent projects, and challenges they face. This will show you’re genuinely interested and ready to contribute.
✨Tip Number 3
Showcase your unique skills! Whether it’s financial acumen or research expertise, make sure to highlight how your background aligns with the needs of the Board. We want to see how you can make a real impact.
✨Tip Number 4
Apply through our website! It’s the best way to ensure your application gets the attention it deserves. Plus, it shows you’re serious about joining the team and making a difference.
We think you need these skills to ace Trustees
Some tips for your application 🫡
Know Your Stuff: Before you start writing, make sure you understand the role and the mission of Epilepsy Society. Tailor your application to show how your experience aligns with their goals. We want to see your passion for making a difference!
Be Authentic: Let your personality shine through in your application. Share your unique experiences and insights that make you a great fit for the Trustee role. We’re looking for genuine commitment, so don’t hold back!
Keep It Clear and Concise: While we love a good story, keep your application focused and to the point. Use clear language and structure your thoughts logically. This helps us quickly see how you can contribute to the Board.
Apply Through Our Website: Make sure to submit your application through our website. It’s the best way for us to receive your details and ensures you’re considered for the role. Plus, it’s super easy!
How to prepare for a job interview at EPILEPSY SOCIETY
✨Know the Mission Inside Out
Before your interview, dive deep into the Epilepsy Society's mission and values. Understand their impact on the community and be ready to discuss how your personal values align with theirs. This shows genuine interest and commitment.
✨Showcase Relevant Experience
Whether you're applying for the Trustee role in Care Services, Finance, or Research, prepare specific examples from your past that highlight your relevant experience. Be ready to explain how these experiences can contribute to the Society's goals.
✨Prepare Thoughtful Questions
Interviews are a two-way street! Prepare insightful questions about the Board's current challenges and future strategies. This not only demonstrates your engagement but also helps you assess if this role is the right fit for you.
✨Emphasise Collaboration and Ethics
As a potential Trustee, it's crucial to convey your collaborative spirit and ethical judgement. Share examples of how you've worked with diverse teams and made decisions that prioritise fairness and integrity, especially in complex situations.
