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- Tasks: Join DEBRA's Charitable Purposes Committee to shape care and research strategies for Epidermolysis Bullosa.
- Company: DEBRA, a charity dedicated to supporting those with genetic skin disorders.
- Benefits: Gain valuable experience, network with professionals, and contribute to meaningful change.
- Why this job: Make a real impact in the lives of individuals affected by a rare genetic condition.
- Qualifications: Experience in managing complex skin conditions and a passion for genetics or dermatology.
- Other info: Flexible virtual meetings, training provided, and potential pathway to becoming a Trustee.
Overview
Charitable Purposes Committee Member
DEBRA is seeking members for its Charitable Purposes Committee to inform and develop the Charity’s evolving care and research strategy. Our Charitable Purposes Committee advises our Board of Trustees and is responsible for ensuring that the Charity’s resources are used effectively to support our provision of lifelong care and support for sufferers of the genetic skin disorder Epidermolysis Bullosa, and to support our investments in cutting edge research to find a cure for this debilitating condition.
It is an excellent time to join DEBRA’s Charitable Purposes Committee. There are exciting avenues opening up to us on the research side, and our Senior Leadership Team is keen to ambitiously develop our healthcare, support and membership services.
Responsibilities
- Review DEBRA UK’s Research & Care Strategy as it relates to research, health and community support and social policy on an ongoing basis.
- Receive and review reports from medical and scientific experts on current research activities.
- Determine, taking appropriate advice, the priorities for care and research expenditure each year.
- Oversee collaborative partnerships on care and research.
- Develop membership engagement, support and services.
- Review and develop healthcare initiatives to support member care.
- Receive reports on changes in national policy or practice within health and social care and agree appropriate responses from the Charity.
Time commitment
While DEBRA’s Head Office is based in Bracknell, Berkshire, our membership is spread across the UK. To be truly representative of that membership we encourage applicants from anywhere in the UK and committee members can access meetings virtually. We provide any training necessary to allow you to fulfil your committee duties. This is an unpaid volunteer role, but any reasonable travel expenses will be reimbursed in line with the Charity’s expenses policy.
Meetings of the Charitable Purposes Committee currently take place four times a year, each lasting between 2.5-3 hours. The term of appointment is three years.
Serving on DEBRA’s Committees is a pre-requisite to joining our Board and successful applicants would be welcome to apply to be a Trustee after a year of service on the Charitable Purposes Committee.
Diversity
DEBRA is aware that studies have shown that women, people of colour and those living with a disability are less likely to apply for roles unless they believe they meet every single one of the qualifications as described in a job role. The charity is committed to building a diverse and inclusive environment and therefore welcomes applications from everyone regardless of age, gender, ethnicity, sexual orientation, faith or disability. The charity aspires to maintain a representative and diverse Board including women, individuals from ethnic and LGBTQIA communities and those living with disability. Applications from these communities would be welcomed, even in the case that you do not believe you meet every one of the requirements of the role described.
Selection criteria
We’re looking to recruit people from a wide range of experiences and backgrounds. If you believe you have skills developed from your professional life combined with the proactivity, commitment and drive to make a difference and bring a new perspective we would love to hear from you.
We particularly welcome applications from GMC-registered dermatologists with experience in managing complex skin conditions outside of EB. Ideal candidates will bring a strong interest or proven expertise in genetics and/or genomics and clinical applications within dermatology. An understanding of rare diseases and the unique challenges faced by affected individuals and their clinicians is highly valued.
Essential & Desirable Skills
Essential Skills: Experience in managing complex skin conditions outside of EB. Ideal candidates will bring a strong interest or proven expertise in genetics and/or genomics and clinical applications within dermatology. Ability to challenge and to be a critical friend where necessary. Innovative and collaborative mindset. “Can do” and positive attitude.
Desirable Skills: Experience of chronic skin conditions.
How to apply
If you think you can help steer DEBRA as we journey forward, please send your CV and a supporting statement answering these three questions via the email application box below.
- Why do you want to become a DEBRA Committee member?
- What skills do you believe you can bring to the committee?
- What experience will you bring to the committee?
You can send this submission as a written statement, a video or aural submission.
DEBRA is committed to being an inclusive charity, and we welcome and encourage applications from all sections of the community.
The successful candidate will need to undertake a DBS check and sign a Non-Disclosure agreement.
Appointment details
Term: Three years
The information in this description is subject to change. Appointment of a Committee member is at the discretion of the Charity.
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Committee Member employer: DEBRA UK
Contact Detail:
DEBRA UK Recruiting Team
StudySmarter Expert Advice 🤫
We think this is how you could land Committee Member
✨Tip Number 1
Network like a pro! Reach out to current or former committee members on LinkedIn or through mutual connections. A friendly chat can give you insider info and might just help you stand out when it comes to selection.
✨Tip Number 2
Show your passion! When you get the chance to speak with the selection panel, make sure to express why DEBRA's mission resonates with you. Share personal stories or experiences that connect you to the cause.
✨Tip Number 3
Prepare for the interview by researching DEBRA’s recent initiatives and challenges. This will not only show your commitment but also allow you to suggest innovative ideas during discussions.
✨Tip Number 4
Don’t forget to apply through our website! It’s the best way to ensure your application gets the attention it deserves. Plus, it shows you’re serious about joining the team!
We think you need these skills to ace Committee Member
Some tips for your application 🫡
Be Genuine: When you're writing your application, let your true self shine through. We want to know why you’re passionate about joining DEBRA and how your unique experiences can contribute to our mission.
Tailor Your Statement: Make sure to address the specific questions in your supporting statement. Highlight your skills and experiences that align with what we’re looking for, especially in managing complex skin conditions and your interest in genetics.
Keep It Clear and Concise: While we love detail, clarity is key! Make your points straightforward and easy to understand. This helps us see your qualifications without getting lost in too much information.
Apply Through Our Website: Don’t forget to submit your application via our website! It’s the best way to ensure it reaches us directly and gets the attention it deserves. We can’t wait to hear from you!
How to prepare for a job interview at DEBRA UK
✨Know Your Stuff
Make sure you’re well-versed in DEBRA’s mission and the specifics of Epidermolysis Bullosa. Familiarise yourself with current research trends and care strategies related to genetic skin disorders. This will show your genuine interest and commitment to the role.
✨Show Your Passion
When answering why you want to join the Charitable Purposes Committee, let your passion shine through. Share personal stories or experiences that connect you to the cause. This can make a lasting impression on the interviewers.
✨Highlight Relevant Skills
Be ready to discuss your experience managing complex skin conditions and any expertise in genetics or genomics. Prepare examples that demonstrate your innovative mindset and collaborative approach, as these are key traits they’re looking for.
✨Ask Thoughtful Questions
Prepare some insightful questions about DEBRA’s future initiatives or challenges in the field. This not only shows your engagement but also helps you assess if the committee aligns with your values and goals.
