At a Glance
- Tasks: Lead family support initiatives and empower families affected by Dravet Syndrome.
- Company: Join a passionate charity dedicated to improving lives of those with Dravet Syndrome.
- Benefits: Flexible part-time hours, fully remote work, and the chance to make a real difference.
- Other info: Opportunity for personal growth and impactful work in a supportive environment.
- Why this job: Be a key player in a growing organisation that supports families facing complex challenges.
- Qualifications: Experience in family support, disability law, and strong leadership skills required.
The predicted salary is between 36000 - 60000 £ per year.
We are working in partnership with Dravet Syndrome UK (DSUK), a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping nearly 600 families with support, education, and research services, underpinned by a world-class Medical Advisory Board. They are now seeking a Head of Family Services, a newly created senior role to enable DSUK to drive forward with the implementation of their five-year strategic plan, including supporting and empowering families to access the support to which they are entitled in living with a complex and life-limiting condition. This is an exciting opportunity to join a growing organisation and help guide the next stage of their development, enabling them to make a positive difference in the lives of more people affected by Dravet Syndrome in the UK.
Responsibilities:
- Demonstrable ability to interpret and use current legislation and guidance to protect and/or advance people's rights and entitlements.
- Exceptional interpersonal and relationship-building skills, with the confidence and ability to engage effectively with families, healthcare professionals, social workers and other stakeholders.
- Excellent communication skills, including the ability to articulate complex issues clearly and persuasively in written and verbal formats.
- Proven ability to provide high quality professional supervision (reflective practice) to qualified and unqualified staff, in order to maximise personal effectiveness and professional development.
- Excellent organisational and teamworking skills to be able to work remotely, manage and prioritise a varied caseload and delegate effectively.
Qualifications and experience:
- The successful candidate will be compassionate, skilled, hands-on and collaborative with significant experience of a working environment involving families with disability and/or complex needs (e.g. social care, health care, special needs education, disability law and/or family support in a similar organisation).
- You will have good working knowledge of disability law and other relevant statutory and regulatory frameworks, relevant organisations and agencies involved, and experience of an appropriate range of professional interventions.
- You will have demonstrable expertise and advanced training in safeguarding for children and vulnerable adults.
- You have proven leadership skills with the ability to motivate and support colleagues towards achieving shared goals.
Please note: As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check. Applications should include your CV and supporting statement. We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status or other category protected by law.
Details:
- Hours: Part time, 24 hours a week
- Location: Fully Remote, with monthly travel across the UK
- Closing date: 9 November 2025
- Charisma vetting interviews to be completed by 12 November 2025
Head of Family Support - Dravet Syndrome UK employer: Charisma Charity Recruitment
Dravet Syndrome UK is an exceptional employer dedicated to making a meaningful impact in the lives of families affected by Dravet Syndrome. With a strong commitment to employee growth and a supportive work culture, this fully remote role offers flexibility while fostering collaboration and innovation among a passionate team. Join us in empowering families and driving forward our strategic vision, all while enjoying the unique advantage of working within a close-knit charity that values diversity and inclusivity.
Contact Details:
Charisma Charity Recruitment Recruitment Team
StudySmarter Expert Advice🤫
We think this is how you could land Head of Family Support - Dravet Syndrome UK
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We think you need these skills to ace Head of Family Support - Dravet Syndrome UK
Some tips for your application 🫡
Show Your Passion for Social Impact:For a role like Head of Family Support - Dravet Syndrome UK at Charisma Charity Recruitment, your cover letter is your chance to shine a light on why social impact matters to you. Share any personal experiences or volunteer work that highlight your commitment to the cause. We want to see your genuine enthusiasm!
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Don’t Forget Your Availability:As this is a part-time position, clearly outline your availability in your application. Whether you're a student balancing studies or have other commitments, we appreciate transparency. Just pop your available hours in your cover letter or CV so we can see how you fit into our schedule.
How to prepare for a job interview at Charisma Charity Recruitment
✨Show Your Passion for the Cause
When applying for a part-time role in the nonprofit sector, it's essential to convey your genuine enthusiasm for the mission of Charisma Charity Recruitment. Be ready to share personal stories or experiences that highlight why social impact matters to you and how you align with their goals.
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✨Flexibility and Availability are Key
Since it's a part-time role, they might dig into your availability during the interview. Be open and clear about your schedule and how it can align with Charisma Charity Recruitment's needs. They’ll want to know that you can commit without compromising your passion for the work!
