At a Glance
- Tasks: Research and write compelling grant applications to support families affected by Bruck Syndrome.
- Company: Bruck Syndrome Charity, dedicated to supporting a rare genetic condition community.
- Benefits: Gain valuable experience in grant writing while making a real difference.
- Other info: Join a passionate team committed to making a practical impact.
- Why this job: Your writing can directly fund life-changing support for individuals and families.
- Qualifications: Strong writing skills; previous grant writing experience is a plus but not essential.
The predicted salary is between 30000 - 40000 € per year.
Bruck Syndrome Charity (Registered UK Charity No. 1216729) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra-rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
- Diagnosed Individuals: from infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers: who manage round-the-clock physical care, multiple surgeries, and hospitalisations.
- Extended Families: who need emotional and practical support to navigate the realities of a complex rare disease.
Our Core Values
- User-Led Expertise: We believe in “nothing about us without us.” Our leadership and volunteer teams are driven by people with direct, lived experience of Bruck Syndrome.
- Connection and Empathy: We believe no one should face an ultra-rare diagnosis alone. We foster a safe, understanding space where families can share advice, vent frustrations, and celebrate milestones.
- Practical Impact: Empathy is vital, but so is practical help. We are committed to alleviating the financial burden on families through targeted grants for specialised mobility equipment and physical therapies.
- Forward-Thinking: We refuse to accept the status quo. We actively advocate for our community within the medical profession and champion vital research into future treatments to improve the quality of life for the next generation.
What We Do
- Provide Active Support: A flexible, dedicated listening and signposting service for families.
- Fund Essential Care: A grant-making programme for life-changing mobility aids.
- Drive Research & Awareness: Educating healthcare professionals and funding patient-centric medical research.
The Opportunity
Bruck Syndrome Charity is a small but mighty organisation dedicated to supporting individuals and families affected by a rare genetic disorder that causes brittle bones and joint contractures. To fund our vital support groups, financial grants for families, and future research, we need to tap into trust and foundation funding. We are looking for a highly organised and persuasive writer to help us identify and apply for small grants. If you love researching, organising information, and telling compelling stories, your skills could directly fund life-changing equipment and support for our community.
What You Will Do
- Prospecting: Research and identify family trusts, foundations, and corporate giving programs that align with our mission (rare diseases, disability support, medical research).
- Drafting: Write compelling, clear, and concise grant applications or letters of inquiry based on our existing charity data and goals.
- Tracking: Help us maintain a simple spreadsheet tracking application deadlines, requirements, and responses.
Qualifications
- Excellent written communication skills with a persuasive, professional tone.
- Highly organised and capable of independent research.
- Previous experience in grant writing, technical writing, or academic research is a huge plus, but not required if you are a strong writer willing to learn!
The Researcher & Writer (Grant Funding) employer: Bruck Syndrome Charity
Bruck Syndrome Charity is an exceptional employer dedicated to making a meaningful impact in the lives of individuals and families affected by Bruck Syndrome. Our supportive work culture fosters empathy and connection, allowing employees to engage directly with our community while contributing to vital research and funding initiatives. With opportunities for personal growth and the chance to be part of a passionate team, working here means being at the forefront of change in the rare disease sector.
StudySmarter Expert Advice🤫
We think this is how you could land The Researcher & Writer (Grant Funding)
✨Tip Number 1
Network like a pro! Reach out to people in the charity sector or those who have experience with grant writing. You never know who might have insider tips or connections that could help us land that perfect role.
✨Tip Number 2
Practice your pitch! Whether it’s for an interview or a casual chat, being able to clearly articulate why you’re passionate about supporting the Bruck Syndrome community can set you apart. We want to hear your story!
✨Tip Number 3
Stay organised! Keep track of all the grants you’re interested in and their deadlines. A simple spreadsheet can help us manage our applications and ensure we don’t miss any opportunities.
✨Tip Number 4
Apply through our website! It’s the best way to ensure your application gets seen by the right people. Plus, it shows us you’re genuinely interested in being part of our mission to support families affected by Bruck Syndrome.
We think you need these skills to ace The Researcher & Writer (Grant Funding)
Some tips for your application 🫡
Show Your Passion:When you're writing your application, let your passion for supporting the Bruck Syndrome community shine through. We want to see that you genuinely care about making a difference and understand the challenges faced by families affected by this condition.
Be Clear and Concise:Keep your writing clear and to the point. We appreciate a well-structured application that gets straight to the heart of your skills and experiences. Avoid jargon and make sure your message is easy to understand.
Highlight Relevant Experience:Even if you don't have direct grant writing experience, share any relevant skills or experiences that showcase your ability to research and write persuasively. We’re looking for strong writers who can learn quickly, so don’t be shy about what you bring to the table!
Apply Through Our Website:Make sure to submit your application through our website. It helps us keep everything organised and ensures your application gets the attention it deserves. Plus, it’s super easy to do!
How to prepare for a job interview at Bruck Syndrome Charity
✨Know the Cause
Before your interview, dive deep into understanding Bruck Syndrome and the charity's mission. Familiarise yourself with the challenges faced by families affected by this condition. This knowledge will not only show your genuine interest but also help you connect your skills to their needs.
✨Showcase Your Writing Skills
Since the role involves grant writing, be prepared to discuss your writing process. Bring examples of your previous work or even draft a short grant application based on a hypothetical scenario. This will demonstrate your ability to communicate effectively and persuasively.
✨Organisational Skills Matter
Highlight your organisational skills during the interview. Discuss how you manage deadlines and track applications. You might even want to share a simple system you've used in the past to keep your research and writing on track, as this is crucial for the role.
✨Emphasise Empathy and Connection
Bruck Syndrome Charity values connection and empathy. Be ready to talk about why these values resonate with you. Share any personal experiences or insights that illustrate your understanding of the emotional and practical support needed by families facing rare diseases.
