At a Glance
- Tasks: Connect with businesses to create impactful partnerships for our charity.
- Company: Bruck Syndrome Charity, dedicated to supporting the Bruck Syndrome community.
- Benefits: Gain valuable experience in networking and corporate outreach while making a difference.
- Other info: Join a supportive team committed to making a real impact in the community.
- Why this job: Help families facing rare diseases feel less alone by building vital business connections.
- Qualifications: Confident communicator with a passion for advocacy and a background in sales or marketing.
The predicted salary is between 30000 - 40000 € per year.
Bruck Syndrome Charity (Registered UK Charity No. 1216729) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra-rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
- Diagnosed Individuals: From infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers: Who manage round‑the-clock physical care, multiple surgeries, and hospitalisations.
- Extended Families: Who need emotional and practical support to navigate the realities of a complex rare disease.
Our Core Values
- User‑Led Expertise: We believe in “nothing about us without us.” Our leadership and volunteer teams are driven by people with direct, lived experience of Bruck Syndrome.
- Connection and Empathy: We believe no one should face an ultra‑rare diagnosis alone. We foster a safe, understanding space where families can share advice, vent frustrations, and celebrate milestones.
- Practical Impact: Empathy is vital, but so is practical help. We are committed to alleviating the financial burden on families through targeted grants for specialised mobility equipment and physical therapies.
- Forward‑Thinking: We refuse to accept the status quo. We actively advocate for our community within the medical profession and champion vital research into future treatments to improve the quality of life for the next generation.
What We Do
- Provide Active Support: A flexible, dedicated listening and signposting service for families.
- Fund Essential Care: A grant‑making programme for life‑changing mobility aids.
- Drive Research & Awareness: Educating healthcare professionals and funding patient‑centric medical research.
The Opportunity
At Bruck Syndrome Charity, our goal is to ensure no family facing this rare genetic disorder feels alone. To grow our impact and fund our financial grant programmes, we are looking to build relationships with businesses that want to make a meaningful difference. We need an enthusiastic, business‑minded volunteer to help us launch a corporate partnership outreach initiative. You will use your networking skills to connect our small charity with local or national businesses for “Charity of the Year” partnerships, event sponsorships, or employee fundraising initiatives.
What You Will Do
- Identify Targets: Build a list of potential corporate partners whose corporate social responsibility (CSR) goals align with health, disability, or rare diseases.
- Outreach: Draft and send introductory emails or LinkedIn messages to CSR managers or business owners.
- Pitching: Help our core team refine a “sponsorship package” or pitch deck that clearly outlines the mutual benefits of partnering with us.
Qualifications
- Confidence in cold outreach (via email or LinkedIn) and professional communication.
- A background in sales, marketing, business development, or account management is highly desired.
- Friendly, resilient, and passionate about advocating for the rare disease community.
The Networker (Corporate Partnerships) employer: Bruck Syndrome Charity
Bruck Syndrome Charity is an exceptional employer dedicated to making a meaningful impact in the lives of families affected by Bruck Syndrome. Our supportive work culture fosters connection and empathy, allowing employees to engage directly with our community while contributing to vital research and advocacy efforts. We offer unique opportunities for personal and professional growth, empowering our team to drive change and make a real difference in the world of rare diseases.
StudySmarter Expert Advice🤫
We think this is how you could land The Networker (Corporate Partnerships)
✨Tip Number 1
Get your networking game on! Start by reaching out to people in your existing network who might have connections to businesses that align with our mission. A warm introduction can work wonders!
✨Tip Number 2
Don’t be shy about using LinkedIn! Craft a friendly, engaging message to CSR managers or business owners. Remember, it’s all about building relationships, so keep it personal and genuine.
✨Tip Number 3
When pitching, focus on the mutual benefits of partnering with us. Highlight how businesses can make a real impact while also enhancing their brand image. We want them to feel excited about joining our cause!
✨Tip Number 4
Finally, don’t forget to apply through our website! It’s the best way to get involved and show your commitment to making a difference in the Bruck Syndrome community. Let’s do this together!
We think you need these skills to ace The Networker (Corporate Partnerships)
Some tips for your application 🫡
Show Your Passion:When you're writing your application, let your enthusiasm for the Bruck Syndrome community shine through. We want to see that you genuinely care about making a difference and supporting those affected by this rare condition.
Tailor Your Message:Make sure to customise your application to highlight how your skills and experiences align with our mission. We love seeing applicants who take the time to connect their background in sales or marketing to our goals at Bruck Syndrome Charity.
Be Clear and Concise:Keep your application straightforward and to the point. We appreciate clarity, so make sure your writing is easy to read and gets straight to the heart of why you’d be a great fit for the role.
Apply Through Our Website:Don’t forget to submit your application through our website! It’s the best way for us to keep track of all applications and ensures you’re considered for this exciting opportunity to help our community.
How to prepare for a job interview at Bruck Syndrome Charity
✨Know Your Cause
Before the interview, dive deep into understanding Bruck Syndrome and the charity's mission. Familiarise yourself with the challenges faced by families affected by this condition. This knowledge will not only show your genuine interest but also help you connect on a personal level during the conversation.
✨Showcase Your Networking Skills
Prepare specific examples of how you've successfully built partnerships in the past. Whether it's through cold outreach or event sponsorships, be ready to discuss your strategies and outcomes. This will demonstrate your capability to drive the corporate partnership outreach initiative effectively.
✨Emphasise Empathy and Connection
Since the charity values connection and empathy, think of ways to express your understanding of the emotional and practical needs of the community. Share any relevant experiences that highlight your ability to relate to others and advocate for those facing challenges.
✨Prepare Your Pitch
Practice pitching the idea of corporate partnerships as if you were already in the role. Outline the mutual benefits for both the charity and potential partners. This will not only prepare you for questions but also showcase your proactive approach and readiness to contribute from day one.
