At a Glance
- Tasks: Support community fundraising efforts and empower individuals to raise money for Bruck Syndrome.
- Company: Bruck Syndrome Charity, dedicated to supporting those affected by a rare genetic condition.
- Benefits: Gain valuable experience, build connections, and make a real difference in people's lives.
- Other info: Join a passionate team and contribute to meaningful change in the Bruck Syndrome community.
- Why this job: Be a champion for a cause and help turn supporters into fundraising heroes.
- Qualifications: High energy, empathetic, and organised with a knack for online communication.
The predicted salary is between 25000 - 30000 € per year.
Bruck Syndrome Charity (Registered UK Charity No. 1216729) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra-rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
- Diagnosed Individuals: From infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers: Who manage round-the-clock physical care, multiple surgeries, and hospitalisations.
- Extended Families: Who need emotional and practical support to navigate the realities of a complex rare disease.
Our Core Values
- User-Led Expertise: We believe in "nothing about us without us." Our leadership and volunteer teams are driven by people with direct, lived experience of Bruck Syndrome.
- Connection and Empathy: We believe no one should face an ultra-rare diagnosis alone. We foster a safe, understanding space where families can share advice, vent frustrations, and celebrate milestones.
- Practical Impact: Empathy is vital, but so is practical help. We are committed to alleviating the financial burden on families through targeted grants for specialised mobility equipment and physical therapies.
- Forward-Thinking: We refuse to accept the status quo. We actively advocate for our community within the medical profession and champion vital research into future treatments to improve the quality of life for the next generation.
What We Do
- Provide Active Support: A flexible, dedicated listening and signposting service for families.
- Fund Essential Care: A grant-making programme for life-changing mobility aids.
- Drive Research & Awareness: Educating healthcare professionals and funding patient-centric medical research.
The Opportunity
Community fundraising—like sponsored runs, bake sales, and birthday fundraisers, is the lifeblood of small charities. Bruck Syndrome Charity is looking for a motivational and organised volunteer to help us support the amazing individuals who want to raise money for our cause!
If you love championing others, celebrating successes, and organising digital campaigns, you can help us turn everyday supporters into fundraising heroes for the Bruck Syndrome community.
What You Will Do
- Supporter Journey: Be the primary point of contact to thank, encourage, and guide individuals who set up fundraisers for us (e.g., on GoFundMe or social media).
- Campaign Creation: Help us brainstorm and launch one or two virtual campaigns a year (e.g., a "Steps for Bruck" virtual walking challenge).
- Resource Building: Help us create a simple "Fundraising Toolkit" (a PDF with tips, our logo, and facts about Bruck Syndrome) to send to our supporters.
Qualifications
- High energy, empathetic, and excellent at building rapport with people online or via email.
- Organized and able to keep track of various community events happening simultaneously.
- Familiarity with peer-to-peer fundraising platforms (JustGiving, GoFundMe, Facebook Fundraisers) is a bonus!
The Cheerleader (Community & Event Fundraising) employer: Bruck Syndrome Charity
Bruck Syndrome Charity is an exceptional employer dedicated to making a meaningful impact in the lives of those affected by Bruck Syndrome. Our supportive work culture fosters connection and empathy, allowing employees to engage directly with our community while enjoying opportunities for personal and professional growth. By joining us, you will be part of a forward-thinking team that values user-led expertise and actively advocates for change, all while working in a flexible environment that prioritises the well-being of both staff and the families we serve.
StudySmarter Expert Advice🤫
We think this is how you could land The Cheerleader (Community & Event Fundraising)
✨Tip Number 1
Get your networking game on! Reach out to people in the charity sector or those involved with Bruck Syndrome. A friendly chat can open doors and give you insights that a job description just can't.
✨Tip Number 2
Show your passion! When you get the chance to speak with someone from the charity, let your enthusiasm for community fundraising shine through. Share your ideas on how to engage supporters and make a real impact.
✨Tip Number 3
Be proactive! If you see an event or campaign that excites you, don’t wait for an invitation. Reach out and offer your help or suggest new ideas. This shows initiative and commitment to the cause.
✨Tip Number 4
Apply through our website! It’s the best way to ensure your application gets seen by the right people. Plus, it shows you’re serious about joining our mission to support the Bruck Syndrome community.
We think you need these skills to ace The Cheerleader (Community & Event Fundraising)
Some tips for your application 🫡
Show Your Passion:When writing your application, let your enthusiasm for supporting the Bruck Syndrome community shine through. We want to see how much you care about making a difference and championing others!
Be Personal:Share any personal experiences or connections you have with fundraising or rare diseases. This helps us understand your motivation and how you can relate to our community's needs.
Highlight Your Skills:Make sure to showcase your organisational skills and any experience with digital campaigns or peer-to-peer fundraising platforms. We’re looking for someone who can juggle multiple events and keep everything running smoothly!
Apply Through Our Website:Don’t forget to submit your application through our website! It’s the best way for us to receive your details and get the ball rolling on your journey with us at Bruck Syndrome Charity.
How to prepare for a job interview at Bruck Syndrome Charity
✨Know the Cause Inside Out
Before your interview, dive deep into understanding Bruck Syndrome and the charity's mission. Familiarise yourself with the challenges faced by the community and think about how your role as a Cheerleader can make a real difference. This knowledge will not only impress the interviewers but also show your genuine passion for the cause.
✨Showcase Your Fundraising Flair
Be ready to discuss your previous experiences with community fundraising or event organisation. Share specific examples of campaigns you've been involved in, highlighting your role and the impact it had. If you have ideas for future campaigns, don’t hesitate to bring them up – it shows initiative and creativity!
✨Emphasise Empathy and Connection
Since this role is all about supporting individuals and families, demonstrate your ability to connect with people. Prepare to share instances where you've built rapport or provided support in challenging situations. Highlighting your empathetic nature will resonate well with the charity's core values.
✨Prepare Questions That Matter
Interviews are a two-way street, so come prepared with thoughtful questions about the charity’s goals, upcoming campaigns, and how they measure success. This not only shows your interest but also helps you gauge if the role aligns with your values and aspirations.
