At a Glance
- Tasks: Research and write compelling grant applications to support families affected by Bruck Syndrome.
- Company: Bruck Syndrome Charity, dedicated to supporting a rare genetic condition community.
- Benefits: Gain valuable experience in grant writing while making a real difference.
- Other info: Join a passionate team committed to making a practical impact in the community.
- Why this job: Your writing can directly fund life-changing support for individuals and families.
- Qualifications: Strong writing skills; previous grant writing experience is a bonus but not essential.
The predicted salary is between 30000 - 40000 £ per year.
Bruck Syndrome Charity (Registered UK Charity No. ) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra-rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
- Diagnosed Individuals: from infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers: who manage round-the-clock physical care, multiple surgeries, and hospitalisations.
- Extended Families: who need emotional and practical support to navigate the realities of a complex rare disease.
Our Core Values
- User-Led Expertise: We believe in “nothing about us without us.” Our leadership and volunteer teams are driven by people with direct, lived experience of Bruck Syndrome. We know the daily realities because we live them.
- Connection and Empathy: We believe no one should face an ultra-rare diagnosis alone. We foster a safe, understanding space where families can share advice, vent frustrations, and celebrate milestones.
- Practical Impact: Empathy is vital, but so is practical help. We are committed to alleviating the financial burden on families through targeted grants for specialised mobility equipment and physical therapies.
- Forward-Thinking: We refuse to accept the status quo. We actively advocate for our community within the medical profession and champion vital research into future treatments to improve the quality of life for the next generation.
What We Do
- Provide Active Support: A flexible, dedicated listening and signposting service for families.
- Fund Essential Care: A grant-making programme for life-changing mobility aids.
- Drive Research & Awareness: Educating healthcare professionals and funding patient-centric medical research.
The Opportunity
Bruck Syndrome Charity (Registered UK Charity Number ) is a small but mighty organisation dedicated to supporting individuals and families affected by a rare genetic disorder that causes brittle bones and joint contractures. To fund our vital support groups, financial grants for families, and future research, we need to tap into trust and foundation funding.
We are looking for a highly organised and persuasive writer to help us identify and apply for small grants. If you love researching, organising information, and telling compelling stories, your skills could directly fund life-changing equipment and support for our community.
What You Will Do
- Prospecting: Research and identify family trusts, foundations, and corporate giving programs that align with our mission (rare diseases, disability support, medical research).
- Drafting: Write compelling, clear, and concise grant applications or letters of inquiry based on our existing charity data and goals.
- Tracking: Help us maintain a simple spreadsheet tracking application deadlines, requirements, and responses.
Qualifications
- Excellent written communication skills with a persuasive, professional tone.
- Highly organised and capable of independent research.
- Previous experience in grant writing, technical writing, or academic research is a huge plus, but not required if you are a strong writer willing to learn!
The Researcher & Writer (Grant Funding) in London employer: Bruck Syndrome Charity
Bruck Syndrome Charity is an exceptional employer dedicated to making a meaningful impact in the lives of individuals and families affected by Bruck Syndrome. Our supportive work culture fosters empathy and connection, allowing employees to engage directly with our community while contributing to vital research and funding initiatives. With opportunities for personal growth and the chance to be part of a passionate team, working here means being at the forefront of change in the rare disease sector.
StudySmarter Expert Advice🤫
We think this is how you could land The Researcher & Writer (Grant Funding) in London
✨Tip Number 1
Get to know the charity inside out! Familiarise yourself with their mission, values, and the community they serve. This will help you tailor your approach and show them you're genuinely passionate about making a difference.
✨Tip Number 2
Network like a pro! Reach out to current or former employees, volunteers, or anyone connected to the Bruck Syndrome Charity. They can provide insider tips and might even put in a good word for you!
✨Tip Number 3
Prepare for the interview by thinking of examples that showcase your skills in research and writing. Be ready to discuss how your work can directly impact the lives of those affected by Bruck Syndrome.
✨Tip Number 4
Apply through our website! It’s the best way to ensure your application gets seen. Plus, it shows you’re serious about joining our mission to support the Bruck Syndrome community.
We think you need these skills to ace The Researcher & Writer (Grant Funding) in London
Some tips for your application 🫡
Show Your Passion:When you're writing your application, let your enthusiasm for supporting the Bruck Syndrome community shine through. We want to see that you genuinely care about making a difference and understand the challenges faced by those affected.
Be Clear and Concise:Keep your writing straightforward and to the point. We appreciate clarity, so avoid jargon and long-winded sentences. Make it easy for us to see how your skills align with our mission and the role.
Tailor Your Application:Make sure to customise your application for this specific role. Highlight any relevant experience or skills that relate directly to grant writing or research. We love seeing how you can contribute to our goals!
Check Your Details:Before hitting send, double-check your application for any typos or errors. A polished application shows us that you’re detail-oriented and serious about the opportunity. And remember, apply through our website for the best chance!
How to prepare for a job interview at Bruck Syndrome Charity
✨Know the Cause
Before your interview, take some time to really understand Bruck Syndrome and the charity's mission. Familiarise yourself with the challenges faced by the community and think about how your skills can contribute to their goals. This will show your genuine interest and commitment.
✨Showcase Your Writing Skills
Since the role involves grant writing, be prepared to discuss your writing process. Bring examples of your previous work or even draft a short grant application based on a hypothetical scenario. This will demonstrate your ability to communicate effectively and persuasively.
✨Be Organised
Highlight your organisational skills during the interview. Discuss how you would manage tracking application deadlines and requirements. You might even want to share a system you've used in the past to keep your research and writing on track.
✨Emphasise Empathy and Connection
Given the charity's core values, it's important to convey your understanding of the emotional aspects of working with families affected by rare diseases. Share any relevant experiences that showcase your ability to connect with others and provide support, as this aligns with the charity's mission.
