At a Glance
- Tasks: Connect with businesses to create impactful partnerships for our charity.
- Company: Bruck Syndrome Charity, dedicated to supporting the Bruck Syndrome community.
- Benefits: Gain valuable experience, enhance your networking skills, and make a real difference.
- Other info: Join a supportive team committed to making a practical impact.
- Why this job: Help families facing rare diseases feel less alone while building your professional network.
- Qualifications: Confident communicator with a passion for advocacy and a background in business.
The predicted salary is between 30000 - 40000 € per year.
Bruck Syndrome Charity (Registered UK Charity No. 1216729) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra-rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
- Diagnosed Individuals: From infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers: Who manage round‐the-clock physical care, multiple surgeries, and hospitalisations.
- Extended Families: Who need emotional and practical support to navigate the realities of a complex rare disease.
Our Core Values
- User‐Led Expertise: We believe in "nothing about us without us." Our leadership and volunteer teams are driven by people with direct, lived experience of Bruck Syndrome.
- Connection and Empathy: We believe no one should face an ultra‐rare diagnosis alone. We foster a safe, understanding space where families can share advice, vent frustrations, and celebrate milestones.
- Practical Impact: Empathy is vital, but so is practical help. We are committed to alleviating the financial burden on families through targeted grants for specialised mobility equipment and physical therapies.
- Forward‐Thinking: We refuse to accept the status quo. We actively advocate for our community within the medical profession and champion vital research into future treatments to improve the quality of life for the next generation.
What We Do
- Provide Active Support: A flexible, dedicated listening and signposting service for families.
- Fund Essential Care: A grant‐making programme for life‐changing mobility aids.
- Drive Research & Awareness: Educating healthcare professionals and funding patient‐centric medical research.
The Opportunity
At Bruck Syndrome Charity, our goal is to ensure no family facing this rare genetic disorder feels alone. To grow our impact and fund our financial grant programmes, we are looking to build relationships with businesses that want to make a meaningful difference.
We need an enthusiastic, business‐minded volunteer to help us launch a corporate partnership outreach initiative. You will use your networking skills to connect our small charity with local or national businesses for "Charity of the Year" partnerships, event sponsorships, or employee fundraising initiatives.
What You Will Do
- Identify Targets: Build a list of potential corporate partners whose corporate social responsibility (CSR) goals align with health, disability, or rare diseases.
- Outreach: Draft and send introductory emails or LinkedIn messages to CSR managers or business owners.
- Pitching: Help our core team refine a "sponsorship package" or pitch deck that clearly outlines the mutual benefits of partnering with us.
Qualifications
- Confidence in cold outreach (via email or LinkedIn) and professional communication.
- A background in sales, marketing, business development, or account management is highly desired.
- Friendly, resilient, and passionate about advocating for the rare disease community.
The Networker (Corporate Partnerships) in London employer: Bruck Syndrome Charity
Bruck Syndrome Charity is an exceptional employer dedicated to making a meaningful impact in the lives of families affected by Bruck Syndrome. Our supportive work culture fosters connection and empathy, allowing employees to engage directly with our community while advocating for vital research and practical support. We offer unique opportunities for personal and professional growth, empowering our team to drive change and make a real difference in the rare disease landscape.
StudySmarter Expert Advice🤫
We think this is how you could land The Networker (Corporate Partnerships) in London
✨Tip Number 1
Get your networking game on! Attend events related to health, disability, or rare diseases. It's all about making connections and showing your passion for the cause. Remember, people love to support those who genuinely care!
✨Tip Number 2
Don’t be shy about reaching out! Use LinkedIn to connect with CSR managers or business owners. A friendly message can go a long way in starting a conversation about potential partnerships. Just be yourself and let your enthusiasm shine through!
✨Tip Number 3
When pitching, focus on the mutual benefits. Make it clear how partnering with Bruck Syndrome Charity can enhance their brand image while making a real difference. We want them to see the value in supporting our community!
✨Tip Number 4
Finally, don’t forget to apply through our website! It’s the best way to get involved and show us you’re serious about making an impact. We’re excited to see what you bring to the table!
We think you need these skills to ace The Networker (Corporate Partnerships) in London
Some tips for your application 🫡
Be Yourself:When you're writing your application, let your personality shine through! We want to see the real you, so don’t be afraid to share your passion for supporting the Bruck Syndrome community.
Tailor Your Application:Make sure to customise your application to highlight how your skills and experiences align with our mission. Show us how your background in sales or marketing can help us connect with potential corporate partners.
Show Your Enthusiasm:We love seeing candidates who are genuinely excited about the role! Make sure to express your enthusiasm for building partnerships and making a difference in the lives of those affected by Bruck Syndrome.
Apply Through Our Website:Don’t forget to submit your application through our website! It’s the best way for us to receive your details and ensures you’re considered for this amazing opportunity to make an impact.
How to prepare for a job interview at Bruck Syndrome Charity
✨Know Your Cause
Before the interview, take some time to really understand Bruck Syndrome and the charity's mission. Familiarise yourself with the challenges faced by the community and think about how your skills can help address these issues. This will show your genuine interest and commitment.
✨Showcase Your Networking Skills
Prepare examples of your past networking successes. Think about specific instances where you’ve built partnerships or secured sponsorships. Be ready to discuss your approach to cold outreach and how you can leverage your connections to benefit the charity.
✨Tailor Your Pitch
When discussing your ideas for corporate partnerships, make sure to align them with the charity’s core values. Highlight how potential partners can make a meaningful impact while also benefiting from their involvement. A well-thought-out pitch can set you apart from other candidates.
✨Ask Insightful Questions
Prepare thoughtful questions that demonstrate your understanding of the charity's goals and challenges. Inquire about their current partnerships or what they envision for future collaborations. This shows that you’re not just interested in the role, but also in contributing to their mission.
