At a Glance
- Tasks: Support community fundraising and empower individuals to raise money for Bruck Syndrome.
- Company: Bruck Syndrome Charity, dedicated to supporting a rare genetic condition community.
- Benefits: Gain experience in fundraising, build connections, and make a real difference.
- Other info: Join a passionate team and contribute to meaningful community impact.
- Why this job: Be a champion for change and help families facing unique challenges.
- Qualifications: High energy, empathetic, and organised with online communication skills.
The predicted salary is between 25000 - 30000 £ per year.
Bruck Syndrome Charity (Registered UK Charity No. ) is the only organisation in the UK dedicated entirely to supporting the Bruck Syndrome community. We exist to provide a lifeline to individuals and families navigating the profound challenges of this ultra‑rare genetic condition.
Why We Exist
Bruck Syndrome is uniquely characterised by a combination of severe bone fragility (osteogenesis imperfecta) and congenital joint contractures. Because the condition is so exceptionally rare, families often face a lonely journey marked by a lack of clinical awareness, complex medical needs, and a constant battle for specialised support. We were founded to change this.
Whom We Serve
- Diagnosed Individuals – from infants requiring early intervention to adults managing lifelong mobility needs.
- Parents and Carers – who manage round‑the‑clock physical care, multiple surgeries, and hospitalisations.
- Extended Families – who need emotional and practical support to navigate the realities of a complex rare disease.
Our Core Values
- User‑Led Expertise – We believe in nothing about us without us. Our leadership and volunteer teams are driven by people with direct, lived experience of Bruck Syndrome. We know the daily realities because we live them.
- Connection and Empathy – We believe no one should face an ultra‑rare diagnosis alone. We foster a safe, understanding space where families can share advice, vent frustrations, and celebrate milestones.
- Practical Impact – Empathy is vital, but so is practical help. We are committed to alleviating the financial burden on families through targeted grants for specialised mobility equipment and physical therapies.
- Forward‑Thinking – We refuse to accept the status quo. We actively advocate for our community within the medical profession and champion vital research into future treatments to improve the quality of life for the next generation.
What We Do
- Provide Active Support – A flexible, dedicated listening and signposting service for families.
- Fund Essential Care – A grant‑making programme for life‑changing mobility aids.
- Drive Research & Awareness – Educating healthcare professionals and funding patient‑centric medical research.
The Opportunity
Community fundraising—like sponsored runs, bake sales, and birthday fundraisers—is the lifeblood of small charities. Bruck Syndrome Charity is looking for a motivational and organised volunteer to help us support the amazing individuals who want to raise money for our cause! If you love championing others, celebrating successes, and organising digital campaigns, you can help us turn everyday supporters into fundraising heroes for the Bruck Syndrome community.
What You Will Do
- Supporter Journey – Be the primary point of contact to thank, encourage, and guide individuals who set up fundraisers for us (e.g., on GoFundMe or social media).
- Campaign Creation – Help us brainstorm and launch one or two virtual campaigns a year (e.g., a Steps for Bruck virtual walking challenge).
- Resource Building – Help us create a simple Fundraising Toolkit (a PDF with tips, our logo, and facts about Bruck Syndrome) to send to our supporters.
Qualifications
- High energy, empathetic, and excellent at building rapport with people online or via email.
- Organised and able to keep track of various community events happening simultaneously.
- Familiarity with peer‑to‑peer fundraising platforms (JustGiving, GoFundMe, Facebook Fundraisers) is a bonus!
The Cheerleader (Community & Event Fundraising) in London employer: Bruck Syndrome Charity
Bruck Syndrome Charity is an exceptional employer dedicated to making a meaningful impact in the lives of those affected by Bruck Syndrome. Our supportive work culture fosters empathy and connection, allowing employees to engage directly with our community while developing their skills in fundraising and event management. With opportunities for personal growth and the chance to be part of a forward-thinking organisation, we invite passionate individuals to join us in championing this vital cause.
StudySmarter Expert Advice🤫
We think this is how you could land The Cheerleader (Community & Event Fundraising) in London
✨Tip Number 1
Get to know the charity inside out! Familiarise yourself with Bruck Syndrome and the amazing work they do. This way, when you chat with potential supporters, you can share genuine stories and connect on a deeper level.
✨Tip Number 2
Network like a pro! Attend community events or online meet-ups related to fundraising. The more people you meet, the more potential fundraisers you’ll have in your corner. Plus, it’s a great way to spread the word about Bruck Syndrome!
✨Tip Number 3
Leverage social media! Use platforms like Instagram and Facebook to create buzz around fundraising campaigns. Share engaging content that highlights the impact of donations, and encourage others to join in the fun!
✨Tip Number 4
Don’t forget to follow up! After someone has set up a fundraiser, check in with them regularly. A simple thank you or encouragement can go a long way in keeping their motivation high and ensuring they feel supported throughout their journey.
We think you need these skills to ace The Cheerleader (Community & Event Fundraising) in London
Some tips for your application 🫡
Show Your Passion:When writing your application, let your enthusiasm for supporting the Bruck Syndrome community shine through. We want to see how much you care about making a difference and championing others in their fundraising efforts.
Be Personal and Relatable:Use a friendly tone and share any personal experiences or connections you have with fundraising or community support. We love hearing stories that resonate with our mission and values, so don’t hold back!
Highlight Your Organisational Skills:Since you'll be juggling various community events, make sure to showcase your organisational abilities. Mention any relevant experience you have in managing projects or events, as this will help us see how you can keep everything running smoothly.
Apply Through Our Website:We encourage you to submit your application through our website. It’s the best way for us to receive your details and ensures you’re considered for this exciting opportunity to make a real impact in the Bruck Syndrome community.
How to prepare for a job interview at Bruck Syndrome Charity
✨Know the Cause
Before your interview, dive deep into understanding Bruck Syndrome and the charity's mission. Familiarise yourself with the challenges faced by the community and think about how your role as The Cheerleader can make a real difference. This knowledge will not only impress but also show your genuine passion for the cause.
✨Show Your Empathy
Since this role is all about supporting individuals and families, be prepared to share examples of how you've demonstrated empathy in past experiences. Whether it's through volunteer work or personal interactions, showcasing your ability to connect with others will resonate well with the interviewers.
✨Bring Ideas to the Table
Think creatively about potential fundraising campaigns you could propose during the interview. Whether it’s a virtual challenge or a community event, having a couple of ideas ready will demonstrate your enthusiasm and proactive approach to the role. It shows that you're already thinking about how to engage supporters.
✨Organisational Skills Matter
Highlight your organisational skills by discussing how you manage multiple tasks or events simultaneously. You might want to prepare a brief example of a time when you successfully coordinated an event or project. This will reassure them that you can handle the dynamic nature of community fundraising.
