Head of Rare Diseases

Head of Rare Diseases

City of London Full-Time 72000 - 108000 £ / year (est.) No home office possible
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At a Glance

  • Tasks: Lead strategic direction for rare disease research and manage cross-functional teams.
  • Company: Join a pioneering London-based charity transforming life science discoveries into medical breakthroughs.
  • Benefits: Enjoy a competitive salary and hybrid work flexibility.
  • Why this job: Make a real impact in healthcare by advancing treatments for rare diseases.
  • Qualifications: PhD or MD with 10+ years in biomedical sector and expertise in rare diseases required.
  • Other info: Diversity and inclusion are core values; all applicants are encouraged to apply.

The predicted salary is between 72000 - 108000 £ per year.

Our client is a London-based medical research charity at the forefront of innovation in rare diseases, turning cutting-edge life science discoveries into life-changing medical breakthroughs. This is a unique opportunity to join a well-established, mission-driven organisation committed to ensuring that pioneering advancements in medicine reach the patients who need them most.

The Head of Rare Diseases will be responsible for shaping and leading the strategic direction of the Rare and Ultra-Rare Disease portfolio. This individual will oversee the effective operational delivery of this portfolio, managing cross-functional, matrixed teams spanning pre-clinical, clinical, and enabling functions. This individual will ensure that resources are optimally allocated and project plans are delivered efficiently and in alignment with organisational goals.

Must Haves

  • An advanced degree (PhD or MD) in a relevant medical or scientific discipline
  • Over 10 years’ experience in the biomedical sector, with a strong network and demonstrable expertise in rare diseases
  • Deep scientific credibility and a solid technical understanding across biomedical research disciplines
  • Proven track record in building and delivering successful translational research portfolios
  • Experience managing large-scale, multi-million-pound research programmes
  • Exceptional communication, leadership, and strategic planning skills, with a collaborative mindset and ability to engage effectively with a wide range of stakeholders

Location: London-based role with hybrid flexibility.

Remuneration/Package

Market competitive package - further information will be shared if your application is successful.

To Apply

In the first instance please send your resume and any relevant supporting details for consideration to: jenny.tomlins@morganprestwich.com

Diversity and Inclusion

Morgan Prestwich Executive Search is committed to providing a diverse range of talent to our clients. We do not discriminate based on race, religion or sex throughout our screening and matching process. If you are successful, you will receive notification within 5 working days of your submission. If you do not hear from us after this time, please assume that your application was unsuccessful on this occasion.

Head of Rare Diseases employer: Morgan Prestwich - Life Science & Healthcare Executive Search

As a leading medical research charity based in London, our client offers an inspiring work environment where innovation meets purpose. Employees benefit from a collaborative culture that prioritises professional growth and development, alongside the opportunity to make a tangible impact on the lives of patients with rare diseases. With hybrid working options and a commitment to diversity and inclusion, this organisation stands out as an exceptional employer for those seeking meaningful and rewarding careers in the biomedical sector.
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Contact Detail:

Morgan Prestwich - Life Science & Healthcare Executive Search Recruiting Team

StudySmarter Expert Advice 🤫

We think this is how you could land Head of Rare Diseases

✨Tip Number 1

Network with professionals in the rare diseases sector. Attend relevant conferences, seminars, or webinars to connect with key players in the field. This can help you gain insights into the latest trends and potentially get referrals.

✨Tip Number 2

Showcase your leadership skills by engaging in discussions about strategic planning and operational delivery in rare diseases. Consider writing articles or participating in panels to demonstrate your expertise and thought leadership in this niche area.

✨Tip Number 3

Familiarise yourself with the specific challenges and advancements in rare disease research. Being well-versed in current projects and breakthroughs will allow you to speak confidently about how you can contribute to the organisation's goals.

✨Tip Number 4

Prepare for potential interviews by developing a clear vision of how you would lead the Rare and Ultra-Rare Disease portfolio. Think about specific strategies you would implement and be ready to discuss them in detail during your conversations with us.

We think you need these skills to ace Head of Rare Diseases

Advanced Degree (PhD or MD) in a relevant medical or scientific discipline
Over 10 years’ experience in the biomedical sector
Strong network in rare diseases
Deep scientific credibility in biomedical research
Technical understanding across biomedical research disciplines
Proven track record in translational research portfolio management
Experience managing large-scale, multi-million-pound research programmes
Exceptional communication skills
Leadership skills
Strategic planning skills
Collaborative mindset
Ability to engage with a wide range of stakeholders
Operational delivery management
Resource allocation expertise

Some tips for your application 🫡

Understand the Role: Thoroughly read the job description for the Head of Rare Diseases position. Make sure you understand the key responsibilities and required qualifications, as this will help you tailor your application.

Tailor Your CV: Customise your CV to highlight relevant experience in the biomedical sector, particularly in rare diseases. Emphasise your advanced degree, years of experience, and any successful research portfolios you've managed.

Craft a Compelling Cover Letter: Write a cover letter that showcases your passion for rare diseases and your strategic vision for the role. Use specific examples from your past experiences to demonstrate your leadership and communication skills.

Follow Application Instructions: Ensure you send your application to the correct email address provided in the job listing. Double-check that your resume and any supporting documents are attached before hitting send.

How to prepare for a job interview at Morgan Prestwich - Life Science & Healthcare Executive Search

✨Showcase Your Expertise

Make sure to highlight your advanced degree and extensive experience in the biomedical sector. Be prepared to discuss specific projects or research you've led in rare diseases, as this will demonstrate your deep scientific credibility.

✨Demonstrate Leadership Skills

As the Head of Rare Diseases, you'll need exceptional leadership abilities. Share examples of how you've successfully managed cross-functional teams and delivered large-scale research programmes, showcasing your strategic planning skills.

✨Engage with Stakeholders

Effective communication is key in this role. Prepare to discuss how you've engaged with various stakeholders in previous positions. Highlight your collaborative mindset and ability to align project goals with organisational objectives.

✨Prepare for Scenario Questions

Expect scenario-based questions that assess your problem-solving skills in managing complex research portfolios. Think about challenges you've faced in the past and how you overcame them, particularly in the context of rare diseases.

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