The Tuberous Sclerosis Association

The Tuberous Sclerosis Association (TSA) is a UK-based charity dedicated to supporting individuals affected by tuberous sclerosis complex (TSC), a rare genetic condition that can cause benign tumours in various organs. Established with the aim of raising awareness and providing resources, the TSA plays a crucial role in the lives of those impacted by TSC.

Our mission is to improve the quality of life for individuals with TSC through education, support, and research funding. We strive to connect families, patients, and healthcare professionals to foster a community of understanding and shared experiences.

• Support Services: The TSA offers a range of support services including helplines, information packs, and access to specialist advice.
• Awareness Campaigns: We conduct awareness campaigns to educate the public and medical professionals about TSC, aiming to enhance early diagnosis and treatment.
• Research Funding: The association actively funds research initiatives aimed at finding better treatments and ultimately a cure for TSC.

We believe in empowering individuals and families through knowledge and support. Our dedicated team works tirelessly to ensure that no one faces TSC alone. By collaborating with researchers, healthcare providers, and other organisations, we aim to make significant strides in understanding and managing this complex condition.

Join us in our efforts to raise awareness and support those affected by TSC. Together, we can make a difference in the lives of many.