Action Duchenne

Action Duchenne is a leading UK charity dedicated to improving the lives of individuals affected by Duchenne muscular dystrophy (DMD), a severe genetic disorder that primarily affects boys. Established in 2001, the organization has been at the forefront of research, advocacy, and support for families dealing with this challenging condition.

Our mission is to accelerate research into effective treatments and ultimately find a cure for DMD. We work closely with researchers, healthcare professionals, and pharmaceutical companies to facilitate clinical trials and promote innovative therapies.

In addition to our research initiatives, Action Duchenne provides vital support services for families, including information resources, emotional support, and access to specialist care. We believe that no family should face DMD alone, and we strive to empower them through education and community engagement.

We also advocate for policy changes that improve healthcare access and funding for DMD research. Our efforts aim to raise awareness about the condition and ensure that the voices of those affected are heard in decision-making processes.

Through fundraising events, partnerships, and collaborations, we mobilize resources to further our goals. Our dedicated team of staff and volunteers work tirelessly to create a brighter future for those impacted by DMD.

Join us in our fight against Duchenne muscular dystrophy. Together, we can make a difference and bring hope to countless families across the UK.